ArticleScandinavian journal of caring sciences2022
Family caregivers' experiences of end-of-life care in the acute hospital setting. A qualitative study.
Article in Scandinavian journal of caring sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Making Sense of the Final Moments: A Qualitative Study of Informal Caregivers' Perception of Good Death in the Bereavement Process.Scandinavian journal of caring sciences · 2026Article
- Palliative care conditions managed at home and self-reported challenges experienced by informal home-based caregivers in Rwanda: a qualitative study.BMC palliative care · 2025Article
- The needs of the family caregivers of patients with end-stage chronic obstructive pulmonary disease: a qualitative study in Iran.BMC nursing · 2025Article
- Families' experiences of end-of-life care in an acute private hospital: A qualitative study.Palliative & supportive care · 2025Article
- Family caregivers' role in dignity: A qualitative study can we change the title to : Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country.Palliative & supportive care · 2025Article
- Non-curative care options for patients with advanced-stage head and neck cancer: Current state of the science and future opportunities.Palliative & supportive care · 2025Review
- What are family caregivers' experiences of coordinating end-of-life care at home? A narrative review.Palliative & supportive care · 2025Review
- Enhancing end-of-life care practices on the medicine units: perspectives from nurses and families.BMJ open quality · 2025Article
- Examining Variability in Intra-Hospital Patient Referrals to Specialized Palliative Care: A Comprehensive Analysis of Disciplines and Mortality.Journal of clinical medicine · 2024Article
- Learning needs and perceived barriers and facilitators to end-of-life care: a survey of front-line nurses on acute medical wards.BMJ open quality · 2023Article
- Family caregivers' experiences of end-of-life care in the acute hospital setting. A qualitative study.Scandinavian journal of caring sciences · 2022Article
- Teams and continuity of end-of-life care in hospitals: managing differences of opinion.BMJ open quality · 2022Article
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Authors and funding
3 authors.
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Abstract
backgroundAcute hospital settings are generally not considered adequate places for end-of-life care, but terminally ill patients will continue to die in acute medical wards in the unforeseeable future.
aimThe aim of this study was to investigate family caregivers' experiences of end-of-life care in an acute community hospital in Iceland.
methodsFifteen in-depth qualitative semi-structured interviews were conducted with participants who had been primary caregivers. The transcribed interviews were analysed using thematic content analysis.
findingsFindings indicated that the acute hospital setting is not a suitable environment for end-of-life care. Effective communication and management of symptoms characterised by warmth and security give a sense of resilience. Three main themes emerged: (1) Environmental influences on quality of care; (2) Communication in end-of-life care; (3) The dying process. Each of the themes encompassed a variety of subthemes.
conclusionsFindings suggest that effective communication is the cornerstone of quality of care in the acute hospital environment and essential for establishing a sense of security. The severity of symptoms can deeply affect family caregivers' well-being. Acknowledging and appreciating the meaning of respect and dignity at the end-of-life from family caregivers' perspective is vital.
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