ArticleBritish journal of pain2021
Constellations of pain: a qualitative study of the complexity of women's endometriosis-related pain.
Article in British journal of pain, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Subjective Experience of Dyspareunia in Women with Endometriosis: A Systematic Review with Narrative Synthesis of Qualitative Research.International journal of environmental research and public health · 2021Pooled it
- Illness perceptions among individuals with endometriosis and their longitudinal associations with psychological distress and pain.Journal of health psychology · 2025Article
- Development of the COMPASS model of endometriosis: A COmprehensive model of pain encompassing agency, systemic factors and sense making.British journal of health psychology · 2025Article
- The Voice of Endo: Leveraging Speech for an Intelligent System That Can Forecast Illness Flare-ups.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2025Article
- Non-menstrual pelvic symptoms and women's quality of life: a cross-sectional observational study.PloS one · 2025Observational
- The Black Cloud of Endometriosis on different aspects of the Life of Women with Endometriosis: a qualitative study in Iran.BMC psychiatry · 2024Article
- Psychotherapy with somatosensory stimulation as a complementary treatment for women with endometriosis-associated pain - a qualitative study.BMC complementary medicine and therapies · 2024Article
- Trajectories of pain intensity, pain catastrophizing, and pain interference in the perinatal and postpartum period.Pain reports · 2024Article
- A thematic synthesis of qualitative studies and surveys of the psychological experience of painful endometriosis.BMC women's health · 2024Article
- An artificial intelligence approach for investigating multifactorial pain-related features of endometriosis.PloS one · 2024Article
- Experiences of dysmenorrhea and its treatment among allistic and autistic menstruators: a thematic analysis.BMC women's health · 2023Article
- A Joint Model of Random Forest and Artificial Neural Network for the Diagnosis of Endometriosis.Frontiers in genetics · 2022Article
- That was the year that was.British journal of pain · 2021Article
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Authors and funding
4 authors.
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Abstract
introductionPrior research into endometriosis-related pain has focused on specific aspects of the pain experience such as cyclical pain, emotional aspects of pain and certain types of pain such as dysmenorrhea and dyspareunia. However, research has paid less attention to the diversity and complexity of women's pain experiences, which can lead to failure to recognise some symptoms as part of endometriosis and poor symptom management.
methodsWe conducted qualitative semi-structured face-to-face interviews with 20 women in the United Kingdom recruited from an endometriosis self-help group with a diagnosis of endometriosis via laparoscopy. A topic guide framed questions around experiences of pain. Interviews were audio-recorded and transcribed verbatim. Transcripts were analysed using inductive thematic analysis.
resultsWomen experienced multiple types of pain that they felt were caused by endometriosis and affected many different parts of the body including bowel, bladder, lungs, kidneys, nerves, upper body, lower limbs and head. These pains consisted of different conceptual categories: type, pattern and intensity. These categories came together to create a complex, interrelated experience for each individual that we termed 'constellations of pain' because each woman had a complex set of pain categories and no two individuals appeared to have the same pain experience.
conclusionThe complexity and diversity of endometriosis-related pain found in this study has implications for improving diagnosis, medical and non-medical pain management and improving the clinical encounter between women and healthcare professionals.
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