Evidence map›Paper›PMID 34372847›Full record

ReviewBMC health services research2021

Development and psychometric properties of surveys to assess patient and family caregiver experience with care transitions.

Joann Sorra, Katarzyna Zebrak, Deborah Carpenter, Theresa Famolaro, John Rauch, Jing Li, Terry Davis, Huong Q Nguyen, Megan McIntosh, Suzanne Mitchell and 5 more

Abstract readReview
In one paragraph

Review in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Joann SorraWestat, Rockville, Maryland, USA. joannsorra@westat.com.
Katarzyna ZebrakWestat, Rockville, Maryland, USA.
Deborah CarpenterWestat, Rockville, Maryland, USA.
Theresa FamolaroWestat, Rockville, Maryland, USA.
John RauchWestat, Rockville, Maryland, USA.
Jing LiCenter for Health Services Research, University of Kentucky, Lexington, Kentucky, USA.
Terry DavisLouisiana State University Health Shreveport, Shreveport, Louisiana, USA.
Huong Q NguyenKaiser Permanente Southern California, Pasadena, California, USA.
Megan McIntoshCenter for Health Services Research, University of Kentucky, Lexington, Kentucky, USA.
Suzanne MitchellBoston Medical Center/Boston University School of Medicine, Boston, Massachusetts, USA.
Karen B HirschmanNewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.
Carol LevineUnited Hospital Fund, New York, New York, USA.
Jessica Miller ClouserCenter for Health Services Research, University of Kentucky, Lexington, Kentucky, USA.
Jane BrockTelligen, Greenwood Village, Colorado, USA.
Mark V WilliamsCenter for Health Services Research, University of Kentucky, Lexington, Kentucky, USA.

Funding

Tracking & Evaluation CoreU54GM104940 · NIGMS · LSU PENNINGTON BIOMEDICAL RESEARCH CTR · PI JUDD E SHELLITO · 2012 to 2026
$69.1M
NIGMS NIH HHS U54 GM104940
6 · The paper itself

Abstract

backgroundThe purpose of this study was to develop and administer surveys that assess patient and family caregiver experiences with care transitions and examine the psychometric properties of the surveys. The surveys were designed to ask about 1) the transitional care services that matter most to patients and their caregivers and 2) care outcomes, including the overall quality of transitional care they received, patient self-reported health, and caregiver effort/stress.

methodsSurvey items were developed based on a review of the literature, existing surveys, focus groups, site visits, stakeholder and expert input, and patient and caregiver cognitive interviews. We administered mail surveys with telephone follow up to patients recently discharged from 43 U.S. hospitals. Patients identified the caregivers who helped them during their hospital stay (Time 1 caregiver) and when they were home (Time 2 caregiver). Time 1 and Time 2 caregivers were surveyed by telephone only. The psychometric properties of the survey items and outcome composite measures were examined for each of the three surveys. Items that performed poorly across multiple analyses, including those with low variability and/or a high missing data, were dropped except when they were conceptually important.

resultsThe analysis datasets included responses from 9282 patients, 1245 Time 1 caregivers and 1749 Time 2 caregivers. The construct validity of the three proposed outcome composite measures-Overall Quality of Transitional Care (patient and caregiver surveys), Patient Overall Health (patient survey) and Caregiver Effort/Stress (caregiver surveys) -was supported by acceptable exploratory factor analysis results and acceptable internal consistency reliability. Site-level reliability was acceptable for the two patient outcome composite measures, but was low for Caregiver Effort/Stress (< 0.70). In all surveys, the Overall Quality of Transitional Care outcome composite measure was significantly correlated with other outcome composite measures and most of the single-item measures.

conclusionsOverall, the final patient and caregiver surveys are psychometrically sound and can be used by health systems, hospitals, and researchers to assess the quality of care transitions and related outcomes. Results from these surveys can be used to improve care transitions, focusing on what matters most to patients and their family caregivers.

Indexed as

CaregiversPatient TransferHumansPsychometricsReproducibility of ResultsSurveys and QuestionnairesCaregiversHospitalsPatient experiencePatientsPsychometricsQuality of healthcareSurveys and questionnairesTransitional care

Identifiers

PMID34372847
PMCPMC8353769

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.