Evidence map›Paper›PMID 34369196›Full record

ArticleAutism : the international journal of research and practice2022

Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions.

Emily D'Arcy, Kerry Wallace, Angela Chamberlain, Kiah Evans, Benjamin Milbourn, Sven Bölte, Andrew Jo Whitehouse, Sonya Girdler

Open access · greenAbstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
1.2field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.

  1. Low language capacity in childhood: A systematic review of prevalence estimates.International journal of language & communication disorders
    Pooled it
  2. Article
  3. Article
  4. Article
  5. Neurodevelopmental conditions and adaptive functioning - a co-twin control study.Journal of child psychology and psychiatry, and allied disciplines · 2026
    Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Developing a Prospective Gestational Lyme Disease Study.Methods in molecular biology (Clifton, N.J.) · 2024
    Article
  12. Article
  13. Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers.International journal of environmental research and public health · 2022
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 2 countries.

Emily D'ArcyCurtin University, Australia.ORCID 0000-0001-7978-0123
Kerry WallaceTelethon Kids Institute, Australia.
Angela ChamberlainCurtin University, Australia.
Kiah EvansCurtin University, Australia.ORCID 0000-0003-2850-7674
Benjamin MilbournCurtin University, Australia.
Sven BölteCurtin University, Australia.ORCID 0000-0002-4579-4970
Andrew Jo WhitehouseTelethon Kids Institute, Australia.
Sonya GirdlerCurtin University, Australia.
The Kids Research Institute Australia · AUCurtin University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractYoung children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions.

Indexed as

Autism Spectrum DisorderNeurodevelopmental DisordersPersons with DisabilitiesChildChild, PreschoolFamilyHumansInternational Classification of Functioning, Disability and Healthadaptive behaviorattention-deficit/hyperactivity disorderautism spectrum disordersbehavioral measurementcerebral palsycontent validitydevelopmental delayfunctioning

Identifiers

PMID34369196
PMCPMC9008546
OpenAlexW3192188517

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.