Evidence map›Paper›PMID 34368629›Full record

ArticleJournal of Alzheimer's disease reports2021

Caregiver Response to an Online Dementia and Caregiver Wellness Education Platform.

Katie Rodriguez, Madison Fugard, Shawna Amini, Glenn Smith, Deann Marasco, Julie Shatzer, Michelle Guerrero, Cynthia Garvan, Jonathan Davis, Catherine Price

Open access · diamondAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Alzheimer's disease reports, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
1.2field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 13 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Article
  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Katie RodriguezClinical and Health Psychology, University of Florida, Gainesville, FL, USA.
Madison FugardTrualta Incorporated, Ottawa, Ontario, Canada.
Shawna AminiPerioperative Cognitive Anesthesia Network for Alzheimer's Disease and Related Dementias, University of Florida, Gainesville, FL, USA.
Glenn SmithClinical and Health Psychology, University of Florida, Gainesville, FL, USA.
Deann MarascoAlzheimer's Association, FL, USA.
Julie ShatzerAlzheimer's Association, FL, USA.
Michelle GuerreroTrualta Incorporated, Ottawa, Ontario, Canada.
Cynthia GarvanPerioperative Cognitive Anesthesia Network for Alzheimer's Disease and Related Dementias, University of Florida, Gainesville, FL, USA.
Jonathan DavisTrualta Incorporated, Ottawa, Ontario, Canada.
Catherine PriceClinical and Health Psychology, University of Florida, Gainesville, FL, USA.
University of Florida Health · USAlzheimer's Association · USUniversity of Florida · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWeb-based educational interventions are emerging as a potential solution to improve caregiver dementia knowledge and overall well-being.

objectiveTo assess the feasibility of delivering a web-based intervention for dementia caregivers by examining: 1) engagement with the online platform, 2) skill implementation, and 3) changes on outcome metrics over the 30-day study period.

methodsEnrolled participants were onboarded by a trained research coordinator and provided 24/7 access to the platform over 30 days. At study onset and completion, caregivers completed assessments of care recipient dementia severity and neuropsychiatric symptoms along with instruments which measured dementia knowledge, caregiver burden, and carer experience.

resultsOf 84 referrals, 60 caregivers met study inclusion criteria and 55 completed pre and post study measures. Caregivers completed an average of 8 hours of learning over the 30-day web-based intervention, with 84.4%of participants reporting using at least one skill they learned from the online platform. Eighty-nine percent of participants reported high satisfaction with the web-based educational intervention. There were small effect sizes for decreases in NPIQ neuropsychiatric symptom severity and caregiver distress scores from pre- to post-intervention. Small effect sizes were observed for changes in caregiver burden from pre- to post-intervention among caregivers who perceived their care recipient as having high global deterioration.

conclusionFindings show online educational programs are feasible for informal family caregivers of dementia and have perceived value. Future studies should address caregiver response to online education in less severe versus more severe care recipients, and explore the value of caregiver online platforms in diverse caregiver samples.

Indexed as

Alzheimer’s diseasecaregiver burdendementia knowledgefeasibility studiesinternet-based interventionpersonal satisfaction

Identifiers

PMID34368629
PMCPMC8293668
OpenAlexW3161090932

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.