ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Perceptions of recurrence risk and behavioural changes among first-ever and recurrent stroke survivors: A qualitative analysis.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 21 citations in OpenAlex.
- Social participation in stroke survivors and its influencing factors: a latent profile analysis.BMC health services research · 2026Article
- Mechanisms underlying the association between perceived recurrence risk and negative emotions in patients with ischemic stroke: a cross-sectional study.Frontiers in psychiatry · 2026Article
- Fear of progression and association factors in stroke patients: a latent profile analysis.Frontiers in psychology · 2026Article
- Global Burden and Risk Factors of Stroke in Young Adults, 1990 to 2021: A Systematic Analysis of the Global Burden of Disease Study 2021.Journal of the American Heart Association · 2025Observational
- Current Status of Information and Communication Technologies Utilization, Education Needs, Mobile Health Literacy, and Self-Care Education Needs of a Population of Stroke Patients.Healthcare (Basel, Switzerland) · 2025Article
- How perceived risk of recurrence strengthens health management awareness in stroke patients: the chain mediating role of risk fear and health literacy.Frontiers in public health · 2025Article
- Perception of recurrence risk in patients with IgG4-related disease: a descriptive phenomenological study.Rheumatology advances in practice · 2025Article
- Two-stage DRG grouping of cerebral infarction based on comorbidity and complications classification.Frontiers in public health · 2025Article
- Association between recurrence risk perception and health behavior in patients with recurrent ischemic stroke in China: the mediation effect of self-efficacy.Frontiers in psychology · 2025Article
- Stroke patient and stakeholder engagement (SPSE): concepts, definitions, models, implementation strategies, indicators, and frameworks-a systematic scoping review.Systematic reviews · 2024Article
- Perceptions of recurrence risk and behavioural changes among first-ever and recurrent stroke survivors: A qualitative analysis.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- From risk perception to action: A qualitative study of self-management in hematopoietic stem cell transplant patients.Cell transplantationArticle
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Authors and funding
9 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAmong stroke survivors, the risk of stroke recurrence is high, and stroke survivors' perception of the risk of recurrence is crucial to promote healthy behaviours.
objectivesThis study aimed to explore the perceptions of stroke survivors about their risk of recurrence and healthy behavioural modifications.
designA qualitative interview study was carried out.
resultsWe interviewed 19 stroke survivors from 3 hospitals. Thematic analysis showed that the perceptions of recurrence risk and healthy behavioural changes differed between first-ever and recurrent stroke survivors. Three themes were generated from the data of first-ever stroke survivors: indifference to and unawareness of the risk of stroke recurrence, the need for professional information support and different awareness of the importance of different healthy behaviours. For first-relapse stroke patients: worry but feel powerlessness towards recurrent event, accurate information is still warranted, regret of unhealthy behaviour patterns. For the survivors suffered two or more times recurrences: perceived severity of recurrences, increased psychological care need, incorrect perceptions of healthy behaviour. DISCUSSION AND
conclusionStroke survivors with or without recurrence hold different perceptions towards the risk of recurrence and behavioural changes. The need for information related to warning signs, recurrence risk and risk factors remained consistently unmet. The benefits of healthy behaviours could be a double-edged sword for the prevention of stroke recurrence if the survivors fail to understand these accurately. It is strongly recommended that a specific recurrence risk communication tool and related health education plan be explored on the basis of the number of times patients have experienced stroke recurrence to inform secondary prevention of stroke in the future. PATIENT/PUBLIC CONTRIBUTION: The patients were involved in the formulation of interview questions and conduct of this study. No public was involved in this study.
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