ReviewInternational journal of environmental research and public health2021
Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay.
Review in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
53 citing papers in PubMed, 2 syntheses or guidelines pooled it, 140 citations in OpenAlex.
- The help-seeking experiences of adolescents and youth with endometriosis: a systematic review and thematic synthesis.BMC women's health · 2026Pooled it
- Psychosocial factors associated with pain and health-related quality of life in Endometriosis: A systematic review.European journal of pain (London, England) · 2022Pooled it
- Endometriosis as a determinant of work disability in the Hungarian population: quantifying productivity loss and the need for workplace prevention strategies.Preventive medicine reports · 2026Article
- Transdisciplinary Approach to Endometriosis-Related Chronic Pelvic Pain in Colombia: A Consensus Statement for Patient-Centered CareRevista colombiana de obstetricia y ginecologia · 2026Article
- The impact of endometriosis on educational and professional pathways: a cross-sectional online study.BMC psychology · 2026Article
- Article
- Developing a Trauma-Informed Social Media Campaign to Disseminate Endometriosis-Specific Qualitative Art-Based Research Findings: Tutorial.Journal of medical Internet research · 2026Article
- Information-Seeking Behaviours of CALD Women with Endometriosis in Australia: A Qualitative Study.International journal of environmental research and public health · 2026Article
- Noninvasive BCL6 Preoperative Screening and Anatomic Patterns of Endometriosis in Patients with Unexplained Infertility.Journal of clinical medicine · 2026Article
- Digital health technologies in pain management for patients with endometriosis: A scoping review.PloS one · 2026Article
- Endometriosis treatment pathways in the largest private health insurance in Brazil: A real-world data study.PloS one · 2026Article
- Evaluation of the need for the integration of a nurse specialist (EndoNurse) into the interdisciplinary care of patients with endometriosis: Cross-sectional study.International journal of nursing studies advances · 2025Article
- Article
- Experiences of women with endometriosis & their partners in India: Findings from a qualitative study.The Indian journal of medical research · 2025Article
- Diagnostic Delays and Economic Burden in Japanese Women with Endometriosis: A Cross-Sectional Analysis.International journal of environmental research and public health · 2025Article
- Addressing online-facilitated stigma: a co-design workshop among patients with lived experiences of dyspareunia.BMJ open · 2025Article
- Understanding the Role of Social Negativity in Perceived Life Course Impact and Mental Health Among Women with Endometriosis.Journal of clinical medicine · 2025Article
- Endometriosis- "Either way a tragedy"? A qualitative social media analysis of endometriosis perceptions in Germany.BMC women's health · 2025Article
- Pain in women: bridging the gender pain gap.Pain reports · 2025Article
- Development of the COMPASS model of endometriosis: A COmprehensive model of pain encompassing agency, systemic factors and sense making.British journal of health psychology · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 4 institutions in 1 country.
Funding
Abstract
Endometriosis is a chronic gynecological disease that affects approximately 1 in 10 women of reproductive age. Symptoms of severe pelvic pain, infertility, fatigue, and abnormal menstruation can cause significant negative effects on an individual's physical and mental health, including interactions with their family, friends, and health care providers. Stigma associated with endometriosis has been under-studied and is rarely discussed in current literature. Herein, this paper aims to provide a brief overview of published literature to explore and establish the plausibility of stigma as a driver of suboptimal psychosocial well-being and diagnostic delay among individuals living with endometriosis. We present the clinical characteristics and physical and mental health consequences associated with endometriosis, highlight several theoretical constructs of stigma, and review the limited studies documenting women's lived experiences of endometriosis-related stigma. To mitigate harmful effects of this phenomenon, we recommend increasing efforts to assess the prevalence of and to characterize endometriosis-related stigma, implementing awareness campaigns, and developing interventions that combat the multidimensional negative effects of stigma on timely care, treatment, and quality of life for individuals living with endometriosis.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.