ReviewInternational journal of environmental research and public health2021
A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease.
Review in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 43 citations in OpenAlex.
- Disclosing Inflammatory Bowel Disease: A Systematic Review and Meta-Synthesis Exploring the Experience of, and Barriers and Facilitators to, Self-Disclosure.Journal of clinical psychology in medical settings · 2025Pooled it
- Health-related quality of life in youth with chronic gastrointestinal disease following a biofeedback enhanced cognitive behavioral therapy intervention: A randomized controlled trial.Journal of pediatric gastroenterology and nutrition · 2026Trial
- A Qualitative Study Exploring Psychosocial Care in Inflammatory Bowel Disease: Lessons from Aotearoa New Zealand.International journal of behavioral medicine · 2026Article
- More than a digestive disorder: Perceived stigma in inflammatory bowel disease patients.PloS one · 2026Article
- Association between life satisfaction and selected socio-demographic factors and social and professional activity - a comparative study between patients with Crohn's disease and patients with ulcerative colitis.Przeglad gastroenterologiczny · 2026Article
- The chain mediating roles of stigma and health-promoting lifestyle in the relationship between disability index and posttraumatic growth among patients with inflammatory bowel disease.Frontiers in public health · 2026Article
- Direct and indirect impacts of discrimination, internalized stigma, and disease disclosure on inflammatory bowel disease patient health outcomes.Journal of Crohn's & colitis · 2025Article
- Depression and anxiety symptom networks in hemorrhoid patients: evidence from the UK biobank.BMC psychology · 2025Article
- Pain experience of people with inflammatory bowel disease: a qualitative study.BMJ open gastroenterology · 2025Article
- Mediating role of social support between stigma and social alienation in patients with inflammatory bowel disease: a cross-sectional study.Frontiers in psychology · 2025Article
- Impact of Nursing Interventions via Telephone and Email on the Quality of Life of Patients with Inflammatory Bowel Disease: Preliminary Results of a Comparative Observational Study.Healthcare (Basel, Switzerland) · 2024Article
- Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation.Journal of clinical psychology in medical settings · 2024Article
- The Mediating and Moderating Role of Resilience Between Stigma and Illness Identity Among People with Inflammatory Bowel Disease.Psychology research and behavior management · 2024Article
- Health-Related Quality of Life and Perceived Stigma in Eosinophilic Esophagitis: A Real-World, US, Web-Based Survey.Gastro hep advances · 2024Article
- «Digesting Crohn's Disease»: The Journey of Young Adults since Diagnosis.Journal of clinical medicine · 2023Article
- Understanding Alveolar echinococcosis patients' psychosocial burden and coping strategies-A qualitative interview study.PLoS neglected tropical diseases · 2023Article
- Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn's disease.BMC gastroenterology · 2023Article
- Stigma and its correlates among patients with Crohn's disease: A cross-sectional study in China.International journal of nursing sciences · 2023Article
- Enacted Stigma in Inflammatory Bowel Disease: An Italian Phenomenological Study.Healthcare (Basel, Switzerland) · 2023Article
- Experience of Disease Acceptance in Chinese Patients with Newly Diagnosed Crohn's Disease: A Descriptive Qualitative Study.Patient preference and adherence · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Inflammatory bowel disease (IBD) consists of Crohn's disease and ulcerative colitis, chronic conditions involving inflammation and ulceration of the gastrointestinal tract. Individuals with IBD may be susceptible to experiencing health-related stigma: experienced, perceived, or internalised social exclusion, rejection, blame, or devaluation resulting from negative social judgements based on the disease. This qualitative research synthesis draws together findings from 38 studies describing lived experiences to develop a unified interpretative account of the experience of stigma in IBD. Analysis developed two categories: 'The IBD journey' explores the dynamic ways in which having IBD impacted on individuals' self-identity and 'a need to be understood' examines the tension between wanting to be understood whilst feeling their true experiences needed to be hidden from or were misjudged by the social sphere. The overarching concept 'feeling of otherness' highlights that, rather than a static, binary experience, individuals moved across a continuum ranging from the excluding experience of feeling stigmatised and othered, to the inclusive experience of integration. Individuals fluctuated along this continuum across different physical, social, and health contexts. Psychological adjustment to IBD, drawing on experience of adaptive coping, and reconnecting with valued others through illness disclosure strengthened stigma resistance during more challenging times.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.