Evidence map›Paper›PMID 34355520›Full record

ArticleCancer medicine2021

Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative interview study of parents.

Karim Thomas Sadak, Milki Gemeda, Michelle C Grafelman, Taiwo O Aremu, Joseph P Neglia, David R Freyer, Eileen Harwood, Jude Mikal

Open access · goldAbstract read
In one paragraph

Article in Cancer medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
4.0field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.

  1. The Impact of Social Determinants on Healthcare Transition Readiness Among Adolescent and Young Adult Childhood Cancer Survivors: A Mixed Methods Systematic Review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  7. Health Care Transitions Among Adolescents and Young Adults With Cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Karim Thomas SadakUniversity of Minnesota Masonic Cancer Center, University of Minnesota Masonic Children's Hospital, Minneapolis, Minnesota, USA.ORCID 0000-0002-4511-5456
Milki GemedaUniversity of Minnesota, Minneapolis, Minnesota, USA.
Michelle C GrafelmanUniversity of Minnesota Medical School, Minneapolis, Minnesota, USA.
Taiwo O AremuUniversity of Minnesota Masonic Cancer Center, University of Minnesota Masonic Children's Hospital, Minneapolis, Minnesota, USA.ORCID 0000-0002-9584-6468
Joseph P NegliaUniversity of Minnesota Masonic Cancer Center, University of Minnesota Masonic Children's Hospital, Minneapolis, Minnesota, USA.
David R FreyerChildren's Center for Cancer and Blood Diseases, Children's Hospital Los Angeles, Los Angeles, California, USA.
Eileen HarwoodDivision of Epidemiology & Community Health, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.
Jude MikalDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.
University of Minnesota · USUniversity of Minnesota Children's Hospital · USUniversity of Minnesota Medical Center · USUniversity of Southern California · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSurvivor-focused care for adolescent and young adult (AYA) childhood cancer survivors (CCS) often involves their parents. Recognizing the importance of parents in the ongoing care of CCS, our study sought to identify key aspects of a successful transition for CCS from pediatric- to adult-centered care from the parent perspective.

methodsWe conducted qualitative interviews with 26 parents of CCS who were receiving care in the long-term follow-up (LTFU) clinic at a single institution. We used a semi-structured interview protocol with the parents and conducted a thematic content analysis.

resultsUsing a constant comparison approach, data revealed three primary themes regarding parents' perspectives toward ensuring a seamless transition from pediatric- to adult-centered follow-up care: (1) the transition needs to include seamless communication between all involved parties, (2) survivors need to demonstrate sufficient health care self-efficacy in order to achieve a successful transition, and (3) the survivor-focused care should include support for survivors' overall well-being, including financial and health insurance literacy.

conclusionsFor parents of AYA CCS, the optimal pediatric to adult care transition model should include mechanisms that facilitate communication between parents, CCS, and survivor-focused providers while also supporting self-efficacy and financial literacy as it relates to health insurance.

Indexed as

SurvivorshipAdolescentAdultAftercareCancer SurvivorsFemaleHealth LiteracyHumansMaleNeoplasmsParentsQualitative ResearchSurveys and QuestionnairesTransition to Adult CareYoung AdultChildhood cancer survivor transition qualitative parent

Identifiers

PMID34355520
PMCPMC8446395
OpenAlexW3192760645

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.