ArticleThe oncologist2021
Recall of Genomic Testing Results Among Patients with Cancer.
Article in The oncologist, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Systematic Review of Patient-Reported Measures for Individuals Who Underwent Genetic Testing for Heritable Cancer.The patient · 2026Pooled it
- Community health workers and precision medicine: A randomized controlled trial.Contemporary clinical trials · 2022Trial
- Attitudes of cancer patients toward ctDNA-based liquid biopsy for follow-up.Molecular oncology · 2026Article
- Genomic Analysis Using Liquid Biopsy: Considerations for Pretest Counseling in UK Practice.JCO precision oncology · 2026Review
- Biomarker recall and understanding among people living with metastatic breast cancer - results from an international patient survey.Breast (Edinburgh, Scotland) · 2026Article
- Factors Associated With Inaccurate Recall of Inherited Cancer Genetic Test Results Among Individuals With Germline Pathogenic Variants.Cancer medicine · 2026Article
- Consent, Concern, and Capacity: Factors Associated With Attitudes Toward Pharmacogenetic Testing Among Patients With Gastrointestinal Cancer.Clinical and translational science · 2026Article
- Aligning awareness, systems and policy to increase equitable access to genomically driven cancer care.BMJ oncology · 2026Review
- Patient-centered integration of tumor and germline genetic results can improve cancer care.Nature medicine · 2025Article
- Clinician Recommendation for Hereditary Genetic Testing in Participants at Increased Risk for Hereditary Cancer.Cancers · 2025Article
- Exploring Literacy and Knowledge Gaps and Disparities in Genetics and Oncogenomics Among Cancer Patients and the General Population: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Review
- Strength of evidence underlying the CMS-FDA parallel review of comprehensive genomic profiling tests in the cancer setting.Journal of the National Cancer Institute · 2025Article
- Empowering patients for biomarker-informed care: digital education to bridge HER2-low knowledge gaps in metastatic breast cancer.Frontiers in digital health · 2025Article
- What Do Patients With Cancer Know, or Want to Know, About Genomic Tumor Sequencing and Genetic Testing? A State-of-the-Art Review.Journal of the advanced practitioner in oncology · 2024Review
- Patient survey on cancer genomic medicine in Japan under the national health insurance system.Cancer science · 2024Article
- Experiences of Family Communication and Cascade Genetic Testing for Hereditary Cancer in Medically Underserved Populations-A Qualitative Study.Cancer prevention research (Philadelphia, Pa.) · 2024Article
- Preparing for the unexpected: Recommendations for returning secondary findings in late-stage cancer care.Genetics in medicine : official journal of the American College of Medical Genetics · 2024Article
- Breast cancer knowledge and understanding treatment rationales among diverse breast cancer survivors.Breast cancer research and treatment · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
15 authors.
Funding
Abstract
backgroundGenomic testing of somatic and germline DNA has transformed cancer care. However, low genetic knowledge among patients may compromise care and health outcomes. Given the rise in genomic testing, we sought to understand patients' knowledge of their genetic test results. MATERIALS AND
methodsWe conducted a survey-based study with 85 patients at a comprehensive cancer center. We compared self-reported recall of (a) having had somatic/germline testing and (b) their specific somatic/germline results to the genomic test results documented in the medical record.
resultsApproximately 30% of patients did not recall having had testing. Of those who recalled having testing, 44% of patients with pathogenic/likely pathogenic germline mutations and 57% of patients with reported somatic alterations did not accurately recall their specific gene or variant-level results.
conclusionGiven significant knowledge gaps in patients' recall of genomic testing, there is a critical need to improve patient-directed education and return-of-results strategies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.