ArticleDementia (London, England)2022
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study.
Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.
- The early impacts of COVID-19 on unpaid carers of people living with dementia: part II of a mixed-methods systematic review.Aging & mental health · 2023Pooled it
- The early impacts of COVID-19 on people living with dementia: part I of a mixed-methods systematic review.Aging & mental health · 2023Pooled it
- Trauma-Informed Support in a Dementia Helpline: Retrospective Mixed Methods Study.JMIR formative research · 2026Article
- Mental Health Impacts of COVID-19: Does Prepandemic Cognition and Dementia Status Matter?The journals of gerontology. Series A, Biological sciences and medical sciences · 2024Article
- Caring for people with dementia during the COVID-19 pandemic:a systematic review.Dementia & neuropsychologia · 2024Article
- Building community engagement with caregivers through online interaction and a salutogenic approach in a period of isolation.Frontiers in medicine · 2024Article
- Frontotemporal lobar degeneration.Nature reviews. Disease primers · 2023Review
- Cognition and Functionality Were Not Affected Due to the COVID-19 Pandemic in People with Mild Cognitive Impairment and AD Dementia Attending Digital Non-Pharmacologic Interventions.Brain sciences · 2023Article
- Evaluating the association of COVID-19 restrictions on discharge planning and post-discharge outcomes in the community hospital and Singapore regional health system.Frontiers in health services · 2023Article
- Dementia and the risk of poor outcomes as a result of the COVID-19 pandemic.British journal of neuroscience nursing · 2022Article
- Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort.International journal of geriatric psychiatry · 2022Article
- The Neuropsychiatric Changes After COVID-19 Quarantine in Patients With Cognitive Impairment and Their Caregivers in Chongqing, China: A Cohort Study.Frontiers in aging neuroscience · 2021Article
- The Experiences of Caregivers of Persons Living with Dementia in Jamaica during COVID-19.Gerontology & geriatric medicineArticle
Corrections and comments
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Authors and funding
15 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe COVID-19 pandemic has unprecedented consequences for the management of chronic diseases such as dementia. However, limited evidence exists on the condition of persons with dementia and their caregivers during the pandemic in lower-middle-income countries (LMICs). The study aimed to provide insights into the experiences of persons with dementia and their families during the early phases of the pandemic in India.
methodsThis study adopted a mixed-method approach. One hundred and four persons with dementia and their caregivers were evaluated via telephone using validated instruments and a semi-structured interview guide. We used the quantitative data collected to establish a baseline, whereas qualitative data were analysed thematically.
resultsThe study revealed that persons with dementia and their caregivers experienced difficulties during the pandemic, which included worsening of behaviour, problems in accessing care, disruptions in functional activities and struggles in enforcing infection prevention contributing to caregiver distress. An important finding that emerged was the unchanging reality of caregiving for families. The relative success of the public health response to the COVID-19 pandemic contrasted with the lack of awareness and formal support for dementia.
conclusionsThe COVID-19 pandemic has exposed the vulnerabilities of persons with dementia and their caregivers. This calls for a collaborative reframing of medical care and public health policies to address dementia care.
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Registered trials
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