ArticleClinical rheumatology2021
Caregiver burden and related factors in caregivers of patients with childhood-onset systemic lupus erythematosus.
Article in Clinical rheumatology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.
- Incidence and determinants of anxiety and depression in childhood-onset systemic lupus erythematosus: a systematic review and meta-analysis of proportion.Advances in rheumatology (London, England) · 2026Pooled it
- Article
- A test of a conceptual model of uncertainty, benefit and burden in children and young people with juvenile dermatomyositis.Rheumatology advances in practice · 2026Article
- Depression and anxiety in childhood-onset systemic lupus erythematosus: prevalence, associated factors, and impact on quality of life and family.Pediatric rheumatology online journal · 2025Article
- A qualitative analysis of follow-up interviews with SLE patients from the "living well with lupus" study.Frontiers in medicine · 2025Article
- Proxy-reported health-related quality of life of children with systemic lupus erythematosus and well-being of caregivers: a cross-sectional survey among caregivers in China.European journal of pediatrics · 2024Article
- Caregiver Burden and Depression in Parents of Children with Chronic Diseases.Turkish archives of pediatrics · 2024Article
- Caregiver burden among parents of school-age children with asthma: a cross-sectional study.Frontiers in public health · 2024Article
- Caregiver Burnout in Pediatric Laryngomalacia: The Role of Clinical and Psychological Factors.Cureus · 2023Article
- Predictors of stress in patients with Lupus.Frontiers in medicine · 2022Article
- Quality of Life in Cohabitants of Patients Suffering Inflammatory Bowel Disease: A Cross-Sectional Study.International journal of environmental research and public health · 2021Article
- Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey.Orphanet journal of rare diseases · 2021Article
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveHaving a child with a chronic illness is a source of stress for the whole family, especially the primary caregiver. The aim of this study was to evaluate the associations between caregiver burden and both the caregiver's and child's psychological symptoms in a cohort of children with systemic lupus erythematosus (SLE).
methodsThirty-four patients (aged 9-18 years) with childhood-onset SLE and their caregivers participated in this study. The control group was composed of healthy children and their caregivers. Questionnaires were used to evaluate caregiver burden and the psychological status of parents and children and adolescents with and without SLE.
resultsNo significant difference was found between the study and control groups for caregiver burden, anxiety and depression in parents, and psychological status in children. Caregiver burden was positively correlated with parent's depression, anxiety, and behavioral and peer problems of the children, and it was negatively correlated with the children's prosocial behaviors. According to regression analyses, the parents' depression and children's peer relationship had a positive effect on caregiver burden scores.
conclusionPhysicians should be aware of the presence of psychological symptoms in patients with childhood-onset SLE and their caregivers because it can affect caregiver burden and the caregiver's psychological state. Key points •Caregiver burden was positively correlated with parent's depression and anxiety. •Caregiver burden was positively correlated with children's behavioral and peer problems. •Caregiver burden was negatively correlated with child's prosocial behaviors.
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