Evidence map›Paper›PMID 34341049›Full record

ArticleBMJ open2021

Codesigning consumer engagement strategies with ethnic minority consumers in Australian cancer services: the CanEngage Project protocol.

Reema Harrison, Merrilyn Walton, Elizabeth Manias, Carlene Wilson, Afaf Girgis, Melvin Chin, Desiree Leone, Holly Seale, Allan Ben Smith, Ashfaq Chauhan and 1 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 17 citations in OpenAlex.

  1. Codesigning the iCanPlan Program to promote advance care planning among consumers from ethnic minority backgrounds in cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  2. Improving quality and safety of cancer care for people from ethnic minority backgrounds: what do consumers want?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  3. Article
  4. Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  5. Article
  6. Creating safer cancer care with ethnic minority patients: A qualitative analysis of the experiences of cancer service staff.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  7. Creating space for theory when codesigning healthcare interventions.Journal of evaluation in clinical practice · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 6 institutions in 1 country.

Reema HarrisonAustralian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia reema.harrison@mq.edu.au.ORCID 0000-0002-8609-9827
Merrilyn WaltonPublic Health, The University of Sydney, Sydney, New South Wales, Australia.
Elizabeth ManiasSchool of Nursing and Midwifery, Deakin University, Burwood, Victoria, Australia.ORCID 0000-0002-3747-0087
Carlene WilsonPsychology, Austin Health, Heidelberg, Victoria, Australia.
Afaf GirgisIngham Institute of Applied Research, UNSW, Sydney, New South Wales, Australia.ORCID 0000-0003-4101-4006
Melvin ChinMedical Oncology, Prince of Wales Hospital and Community Health Services, Randwick, New South Wales, Australia.
Desiree LeoneMulticultural Health, Western Sydney Local Health District, Wentworthville, New South Wales, Australia.
Holly SealePopulation Health, UNSW, Sydney, New South Wales, Australia.ORCID 0000-0002-1877-5395
Allan Ben SmithIngham Institute of Applied Research, UNSW, Sydney, New South Wales, Australia.ORCID 0000-0002-2496-7369
Ashfaq ChauhanPopulation Health, UNSW, Sydney, New South Wales, Australia.ORCID 0000-0003-2762-510X
CanEngage Project group
UNSW Sydney · AUAustin Health · AUDeakin University · AUPrince of Wales Hospital · AUSydney Local Health District · AUThe University of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionConsumer engagement is central to high-quality cancer service delivery and is a recognised strategy to minimise healthcare-associated harm. Strategies developed to enhance consumer engagement specifically in relation to preventing healthcare harm include questioning health professionals, raising concerns about possible mistakes or risks in care and encouraging patients and caregivers to report suspected errors. Patients from ethnic minority backgrounds are particularly vulnerable to unsafe care, but current engagement strategies have not been developed specifically for (and with) this population. Using an adapted approach to experience-based codesign (EBCD) to support the target population, the aim of the project is to codesign consumer engagement interventions to increase consumer engagement and safety in New South Wales and Victorian cancer inpatient, outpatient and day procedure services. METHODS AND ANALYSIS: A mixed-method project will be undertaken at six study sites. Our EBCD approach includes a preparatory phase in which we will provide training and support to the codesign participants, in addition to recruiting and training consumer cofacilitators for the codesign workshops. The project will follow the EBCD process of gathering and synthesising observational data from each cancer service, with interview data from consumers and staff. With the resulting in-depth understanding of the safety threats commonly experienced by ethnic minority consumers in each site, we will work through feedback events and codesign groups with consumers and staff to determine how they can be more involved with their care to minimise the potential for patient harm. Consumer engagement interventions will be coproduced in each of the six participating services that are tailored to the ethnic minority populations served. ETHICS AND DISSEMINATION: Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee. The project will provide strategies for ethnic minority consumers to engage with cancer services to minimise healthcare-associated harm that may be applied to diverse healthcare settings.

Indexed as

EthnicityNeoplasmsAustraliaHumansMinority GroupsNew South Walesadult oncologyclinical governancequalitative researchquality in health care

Identifiers

PMID34341049
PMCPMC8330591
OpenAlexW3189497407

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.