ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Mitigating unintended consequences of co-design in health care.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 1 of them a synthesis that pooled it.
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Who cites it
53 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Aligning Priorities of Surgeons and Patients Regarding Obesity and Joint Replacement: Recommendations of the Advisory Committee Codesigning Solutions Regarding Obesity and Arthroplasty Consensus Working Group.Arthroplasty today · 2026Article
- Better Healthcare Together: Co-Designing a Framework for Health Service Co-Design.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Participatory System Mapping of a Hospice Care System With Hospice Stakeholders: Hybrid Design Workshop Study.Journal of participatory medicine · 2026Article
- Using an evidence-informed co-design approach to develop a mechanism to measure experiences of the open disclosure process: an Irish case study.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2026Article
- Co-designing solutions to promote awareness of cervical screening with women of low socio-economic position living in urban areas.BMC public health · 2026Article
- Can co-designing interventions with affected communities help prevent violence against women? Findings from a process evaluation of the E le Saua le Alofa (Love Shouldn't Hurt) pilot in Samoa.Health policy and planning · 2026Article
- Identifying a program's "core components" using a co-design approach: a methodological worked example from a youth mental health and addictions navigation service.Research involvement and engagement · 2026Article
- Essential Factors That Support National Implementation of Designated Registered Nurse Prescribing: A Systems-Thinking Approach.Journal of advanced nursing · 2026Article
- Facilitators' experiences of co-designing an intrapartum care intervention in four sub-Saharan African countries: a qualitative study.BMJ open · 2026Article
- Co-designed principles for establishment of a virtual hospital.Scientific reports · 2026Article
- Addressing the social determinants of youth mental health in Newham and Northern Devon: reflections on co-design and systems change.BMC public health · 2026Article
- Developing guidelines for supporting employees disclosing suicidal distress while working: a Delphi expert consensus study.BMC public health · 2026Article
- An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation.Research involvement and engagement · 2026Article
- Co-design rationales as living documents for reporting the exchange of experiential, professional and scientific perspectives in mental health care innovation.PLOS mental health · 2026Article
- BrainHealth 360: cognitive intervention for older adults designed using a participatory framework.Innovation in aging · 2026Article
- Consumer Co-Design of an Online Resource to Build Communication Skills of Health Consumers: Mixed Methods Study.JMIR formative research · 2025Article
- Co-designing interventions to improve emergency department discharge communication with youths, parents and healthcare providers: a process evaluation.International journal of nursing studies advances · 2025Article
- Nine quick tips for trustworthy machine learning in the biomedical sciences.PLoS computational biology · 2025Article
- Continuity Is Essential: The Experiences of Co-Design Participants During the Implementation of a New Health Service.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCo-design and associated terms are increasingly being used to facilitate values-based approaches to health-care improvement. It is messy and complex, involving diverse actors.
methodsWe explore the notion that initiatives have outcomes other than initially planned is neither new nor novel but is overlooked when thinking about co-design. We explore some of the unintended consequences and outline some optimal conditions that can mitigate challenges. DISCUSSION: Although co-design approaches are being applied in health care, questions remain regarding its ability to produce gains in health outcomes. Little is known about determining whether co-design is the most suitable approach to achieve the given project goals, the levels of involvement required to realize the benefits of co-design or the potential unintended consequences. There is a risk of further marginalizing or adding burden to under-represented populations and/or over-researched populations.
conclusionUndertaking a co-design approach without the optimal conditions for inclusive involvement by all may not result in an equal partnership or improve health or care quality outcomes. Co-design requires on-going reflective discussions and deliberative thinking to remove any power imbalances. However, without adequate resources, a focus on implementation and support from senior leaders, it is a tough ask to achieve. PATIENT OR PUBLIC CONTRIBUTION: This viewpoint article was written by two academics who have undertaken a significant amount of PPI and co-design work with members of the public and patient's right across the health system. Our work guided the focus of this viewpoint as we reflected on our experiences.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.