Evidence map›Paper›PMID 34339081›Full record

ArticleEuropean journal of cancer care2021

Symptom monitoring in cancer and fully automated advice on supportive care: Patients' perspectives on self-management strategies and the eHealth self-management application Oncokompas.

Anouk S Schuit, Valesca van Zwieten, Karen Holtmaat, Pim Cuijpers, Simone E J Eerenstein, C René Leemans, Marije R Vergeer, Jens Voortman, Hakki Karagozoglu, Stijn van Weert and 5 more

Open access · hybridAbstract read
In one paragraph

Article in European journal of cancer care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it, 14 citations in OpenAlex.

  1. Interactive digital tools to support empowerment of people with cancer: a systematic literature review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 5 institutions in 2 countries.

Anouk S SchuitDepartment of Clinical, Neuro and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Amsterdam, Netherlands.ORCID https://orcid.org/0000-0001-7808-9509
Valesca van ZwietenAmsterdam UMC, Department of Otolaryngology - Head and Neck Surgery, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Karen HoltmaatDepartment of Clinical, Neuro and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Amsterdam, Netherlands.
Pim CuijpersDepartment of Clinical, Neuro and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Amsterdam, Netherlands.
Simone E J EerensteinCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
C René LeemansCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Marije R VergeerCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Jens VoortmanCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Hakki KaragozogluCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Stijn van WeertCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Mira KorteAmsterdam UMC, Department of Strategy and Innovation, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Ruud FrambachSchool of Business and Economics, Department of Marketing, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Margot FleurenDepartment of Clinical, Neuro and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Amsterdam, Netherlands.
Jan-Jaap HendrickxCancer Center Amsterdam (CCA), Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.
Irma M Verdonck-de LeeuwDepartment of Clinical, Neuro and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health Research Institute, Amsterdam, Netherlands.
Amsterdam University Medical Centers · NLGGD Amsterdam · NLAmsterdam Neuroscience · NLAcademic Center for Dentistry Amsterdam · NLVrije Universiteit Amsterdam · NL

Funding

ZonMw 844001105
6 · The paper itself

Abstract

objectiveThe web-based application Oncokompas was developed to support cancer patients to self-manage their symptoms. This qualitative study was conducted to obtain insight in patients' self-management strategies to cope with cancer and their experiences with Oncokompas as a fully automated behavioural intervention technology.

methodsData were collected from semi-structured interviews with 22 participants (10 head and neck cancer survivors and 12 incurably ill patients). Interview questions were about self-management strategies and experiences with Oncokompas. Interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis.

resultsParticipants applied several self-management strategies, among which trying to stay in control and make the best of their situation. They described Oncokompas' added value: being able to monitor symptoms and having access to a personal online library. Main reasons for not using Oncokompas were concentration problems, lack of time or having technical issues. Recommendations were made for further development of Oncokompas, relating to its content, technical and functional aspects.

conclusionsSurvivors and incurably ill patients use various self-management strategies to cope with cancer. The objectives of self-management interventions as Oncokompas correspond well with these strategies: taking a certain responsibility for your well-being and being in charge of your life as long as possible by obtaining automated information (24/7) on symptoms and tailored supportive care options.

Indexed as

Head and Neck NeoplasmsSelf-ManagementTelemedicineHumansQualitative ResearchQuality of LifeSurvivorscancereHealthevaluation of carehead and neck cancerself-managementsupportive care

Identifiers

PMID34339081
PMCPMC9285355
OpenAlexW3189133970

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.