ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Preference-based patient participation for most, if not all: A cross-sectional study of patient participation amongst persons with end-stage kidney disease.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient engagement during the transition from nondialysis-dependent chronic kidney disease to dialysis: A meta-ethnography.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Effects of an interactive web-based support system via mobile phone on preference-based patient participation in patients living with hypertension - a randomized controlled trial in primary care.Scandinavian journal of primary health care · 2024Trial
- The Chain of Cannulation: A Qualitative Comparison of the Cannulation Process and European Guidelines.Journal of renal care · 2025Article
- Patient participation-18 months of patient and staff perspectives in kidney care: A mixed methods study addressing the effects of facilitating staff person-centredness.Journal of evaluation in clinical practice · 2025Article
- Facilitating person-centered patient participation in kidney care-a process evaluation of a quasi-experimental study incorporating a tool and training of local implementation teams.BMC health services research · 2024Article
- Translation and psychometric validation of the Patient Participation Culture Tool for healthcare workers in Chinese nursing context.BMC nursing · 2024Article
- Patient participation in end-stage kidney disease care: variation over time and effects of staff-directed interventions - a quasi-experimental study.BMC nephrology · 2023Article
- Feasibility of PURPOSE T in clinical practice and patient participation-A mixed-method study.International wound journal · 2023Article
- The Practice of Shared Decision-Making Among Physiotherapists and Patients with Musculoskeletal Conditions.Journal of multidisciplinary healthcare · 2023Article
- Development and psychometric testing of the patient participation in bedside handover survey.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Patient preferences and experiences of participation in surgical cancer care.Worldviews on evidence-based nursing · 2022Article
- CORRIGENDUM.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Preference-based patient participation for most, if not all: A cross-sectional study of patient participation amongst persons with end-stage kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2021Article
Corrections and comments
- Erratum issuedCORRIGENDUM.2022
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient participation is considered central for good healthcare. Yet, the concept is not fully understood when it comes to patients' experiences of participation in conjunction with their preferences, particularly in long-term healthcare. The aim of this study was to investigate the extent and variation of preference-based patient participation in patients with end-stage kidney disease (ESKD).
methodsA cross-sectional study was conducted with 346 patients in renal care. The main variables were patients' preferences for and experiences of patient participation, determined using the Patient Preferences for Patient Participation tool, the 4Ps. Analyses identified the degree of match between preferences and experiences, that is, the preference-based patient participation measure.
resultsOverall, 57%-84% of the patients reached a sufficient level of preference-based patient participation on the items, while 2%-12% reached an insufficient level. A mismatch indicated either less or more participation than preferred; for example, 40% had less experience than preferred for taking part in planning, and 40% had more than preferred for managing treatment.
conclusionThis study shows that, although many patients reach a sufficient level of preference-based patient participation, this is not the case for all patients and/or attributes. Further opportunities for a mutual understanding of patients' preferences are needed for healthcare professionals to support person-centred patient participation. PATIENT OR PUBLIC CONTRIBUTION: The 4Ps is manufactured in collaboration with people with experience of the patient role, and persons living with ESKD were engaged in identifying their preferences and experiences of participation in renal care.
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