ArticleAlzheimer's & dementia (Amsterdam, Netherlands)2021
Knowledge assessment and psychological impact of genetic counseling in people at risk for familial FTD.
Article in Alzheimer's & dementia (Amsterdam, Netherlands), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
2 citing papers in PubMed.
- Mindfulness-Based Stress Reduction in Pre-symptomatic Genetic Frontotemporal Dementia: A Pilot Study.Frontiers in psychiatry · 2022Article
- Knowledge assessment and psychological impact of genetic counseling in people at risk for familial FTD.Alzheimer's & dementia (Amsterdam, Netherlands) · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionThe decision to undergo genetic testing for familial frontotemporal dementia (fFTD) is challenging and complex. When counseling individuals, clinicians need to know what individuals understand about the type of fFTD for which they may be at elevated risk. Unfortunately, no tools to measure understanding of fFTD exist, and no study has investigated knowledge gain from fFTD genetic counseling.
methodsBefore and after genetic counseling, 42 asymptomatic individuals from fFTD families completed the newly developed fFTD Knowledge Assessment and Psychological Impact Questionnaire (fFTD KAPI-Q), along with affect and mood questionnaires.
resultsGenetic counseling resulted in substantial knowledge gain on the fFTD KAPI-Q (average gain = 40%); those with lower pre-counseling scores gained the most. Negative affect diminished by 11%. Individuals who gained the greatest knowledge demonstrated the greatest reduction in negative affect.
conclusionsGenetic counseling was effective regardless of level of baseline knowledge and has an immediate ameliorative impact on negative affect.
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