Evidence map›Paper›PMID 34333996›Full record

SynthesisDementia (London, England)2022

Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers.

Marianne Saragosa, Lianne Jeffs, Karen Okrainec, Kerry Kuluski

Open access · hybridAbstract readSystematic Review
In one paragraph

Synthesis in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 2 pooled it
4.1field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 2 syntheses or guidelines pooled it, 20 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 4 institutions in 2 countries.

Marianne SaragosaInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, 206712University of Toronto; 518775Sinai Health, Canada.ORCID https://orcid.org/0000-0002-9261-5971
Lianne JeffsInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, 206712University of Toronto; 518775Sinai Health; Lunenfeld-Tanenbaum Research Institute, Canada.
Karen OkrainecInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, 206712University of Toronto; Open Lab, 7989University Health Network; Division of General Internal Medicine, 7989University Health Network; Department of Medicine, University of Toronto, Canada.
Kerry KuluskiInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, 206712University of Toronto; Institute for Better Health, 5543Trillium Health Partners, Canada.
Health Canada · CATrillium Health Centre · CAUniversity Health Network · CAUniversity of Toronto · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Older adults living with dementia are at risk for more complex health care transitions than individuals without this condition, non-impaired individuals. Poor quality care transitions have resulted in a growing body of qualitative empirical literature that to date has not been synthesized. We conducted a systematic literature review by applying a meta-ethnography approach to answer the following question: How do older adults with dementia and/or their caregivers experience and perceive healthcare transition: Screening resulted in a total of 18 studies that met inclusion criteria. Our analysis revealed the following three categories associated with the health care transition: (1) Feelings associated with the healthcare transition; (2) processes associated with the healthcare transition; and (3) evaluating the quality of care associated with the health care transition. Each category is represented by several themes that together illustrate an interconnected and layered experience. The health care transition, often triggered by caregivers reaching a "tipping point," is manifested by a variety of feelings, while simultaneously caregivers report managing abrupt transition plans and maintaining vigilance over care being provided to their family member. Future practice and research opportunities should be more inclusive of persons with dementia and should establish ways of better supporting caregivers through needs assessments, addressing feelings of grief, ongoing communication with the care team, and integrating more personalized knowledge at points of transition.

Indexed as

DementiaTransition to Adult CareAgedAnthropology, CulturalCaregiversHumansPatient Transfercaregiver experiencedementiahealth care transitionmeta-ethnographypatient experience

Identifiers

PMID34333996
PMCPMC8721620
OpenAlexW3188969364

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.