Evidence map›Paper›PMID 34330215›Full record

ArticleBMC gastroenterology2021

Shared decision making in pregnancy in inflammatory bowel disease: design of a patient orientated decision aid.

Astrid-Jane Williams, Neda Karimi, Radha Chari, Susan Connor, Mary A De Vera, Levinus A Dieleman, Tawnya Hansen, Kathleen Ismond, Rshmi Khurana, Dawn Kingston and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC gastroenterology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Review
  2. Review
  3. Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review.Journal of the Canadian Association of Gastroenterology · 2024
    Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Astrid-Jane WilliamsDepartment of Gastroenterology and Hepatology, Liverpool Hospital, Elizabeth St, Liverpool, Sydney, NSW, 1871, Australia. astridjane.williams@health.nsw.gov.au.ORCID http://orcid.org/0000-0002-1756-5329
Neda KarimiSouth Western Sydney Clinical School, The University of New South Wales, Sydney, Australia.
Radha ChariUniversity of Alberta, Edmonton, AB, Canada.
Susan ConnorDepartment of Gastroenterology and Hepatology, Liverpool Hospital, Elizabeth St, Liverpool, Sydney, NSW, 1871, Australia.
Mary A De VeraUniversity of British Columbia, Vancouver, BC, Canada.
Levinus A DielemanUniversity of Alberta, Edmonton, AB, Canada.
Tawnya HansenUniversity of British Columbia, Vancouver, BC, Canada.
Kathleen IsmondUniversity of Alberta, Edmonton, AB, Canada.
Rshmi KhuranaUniversity of Alberta, Edmonton, AB, Canada.
Dawn KingstonUniversity of Calgary, Calgary, AB, Canada.
Katie O'ConnorMount Sinai Hospital, Sinai Health System, University of Toronto, Toronto, ON, Canada.
Daniel C SadowskiUniversity of Alberta, Edmonton, AB, Canada.
Flora Fang-HwaUniversity of British Columbia, Vancouver, BC, Canada.
Eytan WineUniversity of Alberta, Edmonton, AB, Canada.
Yvette LeungUniversity of British Columbia, Vancouver, BC, Canada.
Vivian HuangUniversity of Alberta, Edmonton, AB, Canada.

Funding

Gastroenterological Society of Australia Rose Amarant Grant toMerck Better Care Healthy Communities Funding ProgramWomen and Children's Health Research Institute Clinical/Community Research Integration Support Program
6 · The paper itself

Abstract

backgroundResearch has indicated a lack of disease-specific reproductive knowledge among patients with Inflammatory Bowel Disease (IBD) and this has been associated with increased "voluntary childlessness". Furthermore, a lack of knowledge may contribute to inappropriate medication changes during or after pregnancy. Decision aids have been shown to support decision making in pregnancy as well as in multiple other chronic diseases. A published decision aid for pregnancy in IBD has not been identified, despite the benefit of pre-conception counselling and patient desire for a decision support tool. This study aimed to develop and test the feasibility of a decision aid encompassing reproductive decisions in the setting of IBD.

methodsThe International Patient Decision Aid Standards were implemented in the development of the Pregnancy in IBD Decision Aid (PIDA). A multi-disciplinary steering committee was formed. Patient and clinician focus groups were conducted to explore themes of importance in the reproductive decision-making processes in IBD. A PIDA prototype was designed; patient interviews were conducted to obtain further insight into patient perspectives and to test the prototype for feasibility.

resultsIssues considered of importance to patients and clinicians encountering decisions regarding pregnancy in the setting of IBD included fertility, conception timing, inheritance, medications, infant health, impact of surgery, contraception, nutrition and breastfeeding. Emphasis was placed on the provision of preconception counselling early in the disease course. Decisions relating to conception and medications were chosen as the current focus of PIDA, however content inclusion was broad to support use across preconception, pregnancy and post-partum phases. Favourable and constructive user feedback was received.

conclusionsThe novel development of a decision aid for use in pregnancy and IBD was supported by initial user testing.

Indexed as

Inflammatory Bowel DiseasesPregnancy ComplicationsReproductive BehaviorDecision MakingDecision Making, SharedDecision Support TechniquesFemaleHumansPregnancyConceptionDecision makingInflammatory bowel diseasePregnancy

Identifiers

PMID34330215
PMCPMC8325254

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.