ArticleJournal of autism and developmental disorders2022
Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 78 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
78 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Who, when, where, and why: A systematic review of "late diagnosis" in autism.Autism research : official journal of the International Society for Autism Research · 2025Pooled it
- Outcomes from the ASPEN intervention program: a randomized clinical trial of a culturally adapted parent-mediated intervention program in low-resource settings.Frontiers in psychiatry · 2026Trial
- English-Language Autism Terminology Preferences of Autistic People and their Parents in the United States: Clustering Illuminates Diverse Views.Autism : the international journal of research and practice · 2026Article
- Health Care Transition Experiences for Rural and Urban Autistic Adolescents and Young Adults: A Qualitative Analysis.Autism : the international journal of research and practice · 2026Article
- Common genetic variants are associated with increased likelihood of latent co-occurring neurodevelopmental and mental health factors among autistic individuals.Molecular psychiatry · 2026Article
- Executive Functioning Is Linked to Internalizing Symptoms in Autistic Adults With Higher Support Needs.Autism : the international journal of research and practice · 2026Article
- Article
- Exploring Patterns of Self-Harm in Autistic Adults Using the Card Sort Task for Self-Harm.Autism : the international journal of research and practice · 2026Article
- The emotion dysregulation inventory - self-report: development and psychometric evaluation.Psychological medicine · 2026Article
- Alexithymia, Inner Thinking Patterns, and Perceptions of Mental Health Therapy Strategies Among Autistic Adults.Journal of autism and developmental disorders · 2026Article
- Sleep and activity patterns in autism.Autism : the international journal of research and practice · 2026Article
- Self-Reported Strengths and Difficulties by Autistic Young Adults.Journal of autism and developmental disorders · 2026Article
- Delayed Milestones and Demographic Factors Relate to the Accuracy of Autism Screening in Females Using Spoken Language.Journal of autism and developmental disorders · 2026Article
- Abstention and Threshold Identification for Uncertainty Management in Clinical Decision Tools: A Case Study using Human-In-The-Loop Pediatric Autism Classifiers.Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing · 2026Article
- Sibling Relationship Profiles of Autistic Youths in a Social-Ecological Context.Journal of autism and developmental disorders · 2025Article
- Ensemble Modeling of Multiple Physical Indicators to Dynamically Phenotype Autism Spectrum Disorder.Algorithms · 2025Article
- The How Rather than the What: A Qualitative Analysis of Modalities and Caregiver Descriptions of Special Interests in Autistic Youth.Journal of autism and developmental disorders · 2025Article
- Brief Report: Convergence and Discrepancy Between Self- and Informant-Reported Depressive Symptoms in Young Autistic Adults.Journal of autism and developmental disorders · 2025Article
- Improving Autistic Experiences in the Workplace: Key Factors and Actionable Steps.Journal of autism and developmental disorders · 2025Article
- Relationship between anxiety and executive functioning among youth with Down syndrome.Research in developmental disabilities · 2025Article
18 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
The SPARK cohort was established to facilitate recruitment in studies of large numbers of participants with autism spectrum disorder (ASD). Online registration requires participants to have received a lifetime professional diagnosis by health or school providers although diagnoses are not independently verified. This study was set to examine the validity of self- and caregiver-reported autism diagnoses. Electronic medical records (EMR) of 254 SPARK participants (77.6% male, age 10.7 years) were abstracted. Using two different methods, confirmation of ASD diagnosis in EMRs was obtained in 98.8% of cases. Core clinical features recorded in EMRs were typical of autism samples and showed very good agreement with SPARK cohort data, providing further evidence of the validity of clinical information in the SPARK database.
Indexed as
Identifiers
34328611What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.