Evidence map›Paper›PMID 34326059›Full record

ArticleBMJ open2021

Protocol for developing a healthcare transition intervention for young people with spinal cord injuries using a participatory action research approach.

Emily Alice Bray, Ajesh George, Bronwyn Everett, Yenna Salamonson, Lucie Ramjan

Abstract read
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Emily Alice BraySchool of Nursing and Midwifery, Western Sydney University, Penrith, New South Wales, Australia 16251104@student.westernsydney.edu.au.ORCID 0000-0002-6069-6156
Ajesh GeorgeSchool of Nursing and Midwifery, Western Sydney University, Penrith, New South Wales, Australia.ORCID 0000-0002-6795-2546
Bronwyn EverettSchool of Nursing and Midwifery, Western Sydney University, Penrith, New South Wales, Australia.ORCID 0000-0003-1733-7462
Yenna SalamonsonSchool of Nursing and Midwifery, Western Sydney University, Penrith, New South Wales, Australia.ORCID 0000-0002-7429-4086
Lucie RamjanSchool of Nursing and Midwifery, Western Sydney University, Penrith, New South Wales, Australia.ORCID 0000-0001-7815-3005

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionWhile healthcare transition (HCT) interventions are recognised as an important area in paediatric rehabilitation, there has been limited research focusing on young people with spinal cord injuries (SCI). In this study, researchers will collaborate with young people with SCI and their parents/caregivers to develop, implement and evaluate the feasibility and acceptability of a HCT intervention aimed at supporting young people with SCI during their transition from paediatric to adult healthcare services. METHODS AND ANALYSIS: A participatory action research (PAR) approach will be used to co-develop the HCT intervention with young people with SCI aged 14-25 years and their parents/caregivers. Three phases will be conducted to address the five objectives of this study. Phase 1 will use semi-structured interviews to explore young people and parent/caregivers' experiences of HCT. In Phase 2a, both young people and parent/caregivers will be co-researchers. They will be included in the analysis of the interviews and will be asked to participate in co-design workshops to inform the development of a prototype HCT intervention. In Phase 2b, using focus groups, feedback on the prototype HCT intervention will be collected. In Phase 3, the refined prototype HCT intervention will be implemented, and young people with SCI and parent/caregivers will evaluate the feasibility and acceptability of the HCT intervention in semi-structured interviews. A reference group, including stakeholders and end users, will be consulted at different time points. ETHICS AND DISSEMINATION: The study has received ethics approval from Western Sydney University Human Research and Ethics Committee (H14029). The researcher will use the results of this study as chapters in a thesis to obtain a Doctor of Philosophy degree. The findings will be disseminated via publication in peer-reviewed journals and will be presented at local, national or international conferences. TRIAL REGISTRATION NUMBER: ACTRN12621000500853.

Indexed as

Spinal Cord InjuriesTransition to Adult CareAdolescentAdultCaregiversChildHealth Services ResearchHumansParentsneurological injurypaediatric neurologyqualitative researchstatistics & research methods

Identifiers

PMID34326059
PMCPMC8323394

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.