ArticleClinical parkinsonism & related disorders2021
Video-based Parkinson's disease assessments in a nationwide cohort of Fox Insight participants.
Article in Clinical parkinsonism & related disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 33 citations in OpenAlex.
- ParkinSong Online: Feasibility of Telehealth Delivery and Remote Data Collection for a Therapeutic Group Singing Study in Parkinson's.Neurorehabilitation and neural repair · 2024Trial
- Televisits for Parkinson's disease: benefits and barriers.Journal of neural transmission (Vienna, Austria : 1996) · 2026Review
- Household herbicide use is associated with the risk of Parkinson's disease and a younger age at onset in PPMI and Fox Insight cohorts.Journal of neural transmission (Vienna, Austria : 1996) · 2026Article
- Validation of remote multimodal AI screening for Parkinson disease across diverse settings.Communications medicine · 2026Article
- Examining Device Usage Patterns in Outpatient Telemedicine Video Visits among Movement Disorders Patients.Movement disorders clinical practice · 2026Article
- How Well Do Essential Tremor Patients Report whether or Not They Have Parkinson's Disease? Validity of Self-Report Data from a Large Cohort Study.Neuroepidemiology · 2026Article
- Self-perceived life course sleep duration trajectories and risk and age at onset of Parkinson's disease.NPJ Parkinson's disease · 2025Article
- Constipation in a Large Online Cohort of Persons with Parkinson's Disease.Movement disorders clinical practice · 2025Article
- Genetic Modifiers of Parkinson's Disease: A Case-Control Study.Annals of clinical and translational neurology · 2025Observational
- Exploring the early drivers of pain in Parkinson's disease.Scientific reports · 2025Article
- Fox Insight at 5 years - a cohort of 54,000 participants contributing longitudinal patient-reported outcome, genetic, and microbiome data relating to Parkinson's disease.Scientific data · 2024Article
- A person-centered approach to characterizing longitudinal ambulatory impairment in Parkinson's disease.Scientific reports · 2024Article
- Return of individual research results to participants with and at risk for Parkinson's disease.Journal of clinical and translational science · 2024Article
- Constricting Life Space and Likelihood of Neurodegenerative Disease in Community-Dwelling Older Men.JAMA network open · 2023Article
- Conversion Rate of Essential Tremor to Essential Tremor Parkinson Disease: Data From a Prospective Longitudinal Study.Neurology. Clinical practice · 2023Article
- The Impact of the COVID-19 Pandemic on Care Partners of People with Parkinson's Disease.Movement disorders clinical practice · 2023Article
- Cognitive and Functional Trajectories in Older Adults With Prediagnostic Parkinson Disease.Neurology · 2023Article
- Internal tremor in people with Parkinson's Disease: Demographic characteristics and comorbid symptoms.Clinical parkinsonism & related disorders · 2023Article
- A Remote Longitudinal Observational Study of Individuals at Genetic Risk for Parkinson Disease: Baseline Results.Neurology. Genetics · 2022Article
- Association of Motor and Nonmotor Symptoms With Health-Related Quality of Life in a Large Online Cohort of People With Parkinson Disease.Neurology · 2022Article
Corrections and comments
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Authors and funding
15 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionParkinson's disease (PD) research is hampered by slow, inefficient recruitment and burdensome in-person assessments that may be challenging to conduct in a world affected by COVID-19. Fox Insight is an ongoing prospective clinical research study that enables individuals to participate in clinical research from their own homes by completing online questionnaires. To date, over 45,000 participants with and without PD have enrolled. We sought to validate self-reported PD diagnosis in the Fox Insight cohort, assess the validity of other self-reported health information, and evaluate the willingness of participants to participate in video-based research studies.
methodsIndividuals with and without self-reported PD enrolled in Fox Insight were invited to participate in this virtual research study. Participants completed online questionnaires and two virtual visits, during which we conducted standard cognitive and motor assessments. A movement disorder expert determined the most likely diagnosis, which was compared to self-reported diagnosis.
resultsA total of 203 participants from 40 U.S. states, 159 with remote clinician-determined PD and 44 without, completed the study (59% male, mean (SD) age 65.7 (9.8)). Level of agreement between self-reported PD diagnosis in Fox Insight and clinician-determined diagnosis was very good ((kappa = 0.85, 95% CI 0.76-0.94). Overall, 97.9% of participants were satisfied with the study, 98.5% were willing to participate in a future observational study with virtual visits, and 76.1% were willing to participate in an interventional trial with virtual visits.
conclusionAmong the Fox Insight cohort, self-reported diagnosis is accurate and interest in virtual research studies is high.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.