ArticleJMIR research protocols2021
The COVID-19 Citizen Science Study: Protocol for a Longitudinal Digital Health Cohort Study.
Article in JMIR research protocols, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 37 citations in OpenAlex.
- Email-Based Recruitment Into the Health eHeart Study: Cohort Analysis of Invited Eligible Patients.Journal of medical Internet research · 2023Trial
- Digital Health Intervention to Promote Lifelong Specialized Care in Adults With Congenital Heart Disease: Theory-Driven Community Co-Designed Study.Journal of medical Internet research · 2026Article
- Investigation of the Role of Political Participation in Health: A Scoping Review.Health science reports · 2026Review
- Impact of COVID-19 Pandemic on Quality of Life, Anxiety, Connections to Friends, and Access to Resources Among People with HIV: Using the Social Ecological Model.AIDS and behavior · 2026Article
- Feasibility of a mobile application to track longitudinal pain outcomes after epidural joint injections.Interventional pain medicine · 2025Article
- Concordance Between Survey and Electronic Health Record Data in the COVID-19 Citizen Science Study: Retrospective Cohort Analysis.JMIR formative research · 2025Article
- Chronic low back pain causal risk factors identified by Mendelian randomization: a cross-sectional cohort analysis.The spine journal : official journal of the North American Spine Society · 2025Observational
- Associations between local COVID-19 policies and anxiety in the USA: a longitudinal digital cohort study.BMJ public health · 2025Article
- Participant engagement in a national longitudinal study of COVID-19: Insights from the INSPIRE study.PloS one · 2025Article
- User-Centred Design and Development of a Smartphone Application (Healthcare (Basel, Switzerland) · 2024Article
- Patient-Reported Outcomes Among Adults With Congenital Heart Disease in the Congenital Heart Initiative Registry.JAMA network open · 2024Observational
- Chronic Low Back Pain Causal Risk Factors Identified by Mendelian Randomization: a Cross-Sectional Cohort Analysis.medRxiv : the preprint server for health sciences · 2024Article
- Article
- Association of nirmatrelvir for acute SARS-CoV-2 infection with subsequent Long COVID symptoms in an observational cohort study.Journal of medical virology · 2024Observational
- Which decisions affect cohort distribution in COVID-19 data analytics?AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Development of a decentralized cohort for studying post-acute sequelae of COVID-19 in India in the Data4life Study.Communications medicine · 2023Article
- Enhancing Public Health Communication Regarding Vaccine Trials: Design and Development of the Pan-European VACCELERATE Toolkit.JMIR public health and surveillance · 2023Article
- Factors Associated With Long COVID Symptoms in an Online Cohort Study.Open forum infectious diseases · 2023Article
- Unreported SARS-CoV-2 Home Testing and Test Positivity.JAMA network open · 2023Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundThe COVID-19 pandemic has catalyzed a global public response and innovation in clinical study methods.
objectiveThe COVID-19 Citizen Science study was designed to generate knowledge about participant-reported COVID-19 symptoms, behaviors, and disease occurrence.
methodsCOVID-19 Citizen Science is a longitudinal cohort study launched on March 26, 2020, on the Eureka Research Platform. This study illustrates important advances in digital clinical studies, including entirely digital study participation, targeted recruitment strategies, electronic consent, recurrent and time-updated assessments, integration with smartphone-based measurements, analytics for recruitment and engagement, connection with partner studies, novel engagement strategies such as participant-proposed questions, and feedback in the form of real-time results to participants.
resultsAs of February 2021, the study has enrolled over 50,000 participants. Study enrollment and participation are ongoing. Over the lifetime of the study, an average of 59% of participants have completed at least one survey in the past 4 weeks.
conclusionsInsights about COVID-19 symptoms, behaviors, and disease occurrence can be drawn through digital clinical studies. Continued innovation in digital clinical study methods represents the future of clinical research. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/28169.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.