ArticleFrontiers in human neuroscience2021
Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments.
Article in Frontiers in human neuroscience, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.
- Clinical assessment, investigation, diagnosis and initial management of cerebral visual impairment: a consensus practice guide.Eye (London, England) · 2023Guideline
- Article
- Association of functional and social factors with domain-specific quality of life profiles in children with cerebral palsy: findings from a low- and middle-income country.BMC research notes · 2026Article
- Through their eyes': A qualitative study on the impact of virtual reality on parents' understanding of visual impairment.Eye (London, England) · 2026Article
- Persistence of higher visual function deficits in adults with early-onset cerebral visual impairment: A comparative study.PloS one · 2026Article
- Thalamic Volume Reduction in Cerebral Visual Impairment: Relationship to Visual Dysfunction.Journal of child neurology · 2025Article
- Early years examination to identify suspect cerebral visual impairment (EYE-CVI): a feasibility study.BMJ open ophthalmology · 2025Article
- A school-based intervention to improve mental health outcomes for children with cerebral visual impairment (CVI): feasibility cluster randomised trial.Pilot and feasibility studies · 2025Article
- Identification of Suspect-Cerebral Visual Impairment in Children with Special Needs: Moving Towards an Inclusive Diagnostic Process.The British and Irish orthoptic journal · 2025Article
- Sensory substitution and augmentation techniques in cerebral visual impairment: a discussion of lived experiences.Frontiers in human neuroscience · 2025Article
- Cerebral visual impairment: genetic diagnoses and phenotypic associations.Journal of medical genetics · 2024Article
- Spectrum of Visual Dysfunction Detected by a Novel Testing Protocol Within a Special School Eye Care Service.The British and Irish orthoptic journal · 2024Article
- 'We don't know nearly enough': an online survey exploring perspectives of specialists who support children with brain-based visual impairments.Frontiers in human neuroscience · 2024Article
- Hiding in plain sight: children with visual perceptual difficulties in schools.Frontiers in human neuroscience · 2024Review
- "It's like a guessing game all the time": parent insights on barriers, supports, and priorities for children with cortical visual impairment and complex communication needs.Augmentative and alternative communication (Baltimore, Md. : 1985) · 2023Article
- Barriers and Challenges for Visually Impaired Students in PE-An Interview Study with Students in Austria, Germany, and the USA.International journal of environmental research and public health · 2023Article
- Visual Behaviours (ViBes) in Cerebral Visual Impairment: Validating a Descriptive Tool to Support Diagnosis and Monitoring.The British and Irish orthoptic journal · 2023Article
- Vision-Specific Quality of Life in Children With Cortical or Cerebral Visual Impairment.Journal of visual impairment & blindnessArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating to their development from infancy to adulthood which can impact on their wellbeing. Recent research indicates the complexities of living with CVI but there remains limited information of the full impact of CVI on families' everyday lives. The qualitative interviews reported here explored families' experiences to discover the impact of CVI on all aspects of everyday life. Parents and children (aged 6-18) were invited to participate in semi-structured interviews, either face to face, by phone or video call between January 2018 and February 2019. Topics covered everyday practicalities of living with CVI, focusing on challenges and what worked well at school and home. Interviews were audio-recorded and subject to thematic analysis to look for patterns across the data. Twenty families took part in interviews, with eight children/young people within those families contributing interviews of their own. Four themes were developed from the interviews: (1) Assessment and understanding implications of CVI, (2) Education, (3) Family life, (4) Psychological wellbeing and quality of life. The interviews provide valuable insights into the impact of living with CVI and highlight the need for more awareness of the condition among professionals in both health and education settings.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.