ArticleJournal of eating disorders2021
Life is different now - impacts of eating disorders on Carers in New Zealand: a qualitative study.
Article in Journal of eating disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07178977 (Psychoeducation for Parents of Adolescents With Anorexia Nervosa as a Supportive Treatment Approach), which is not on this map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Psychoeducation for Parents of Adolescents With Anorexia Nervosa as a Supportive Treatment Approach
Who cites it
11 citing papers in PubMed, 17 citations in OpenAlex.
- Mental health interventions for carers of individuals with eating disorders: a systematic review of randomized controlled trials assessing efficacy on anxiety and depressive symptoms.Journal of eating disorders · 2026Review
- Conceptualising trauma in eating disorders: a reflexive commentary on the role of neglect, iatrogenic harm, and epistemic injury.Journal of eating disorders · 2026Article
- Post-Traumatic Stress in Caregivers to Children and Young People With Eating Disorder (ED) Symptoms: A Cross-Sectional Examination of Relationships With Demographics, ED Factors and Caregiver Skills.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- "It's like a car that doesn't like gasoline" - a qualitative study of siblings' understanding of anorexia nervosa in childhood: perspectives from siblings and parents.Journal of eating disorders · 2025Article
- Parents' experiences of caring for a child with an eating disorder: the impact of financial challenges.Journal of eating disorders · 2025Article
- "The credential did make a difference": eating disorder treatment with ANZAED credentialed clinicians: carer perspectives.Journal of eating disorders · 2025Article
- Short-term impact of BREF-ED, an early, single-family psychoeducational programme for caregivers of individuals with eating disorders: A retrospective pilot study.European psychiatry : the journal of the Association of European Psychiatrists · 2025Article
- Acceptability of a personalised single-session feedback intervention for eating disorders: a qualitative content analysis.Journal of eating disorders · 2025Article
- "I don't know how, if, it's ever going to end": narratives of caring for someone with an enduring eating disorder.Eating and weight disorders : EWD · 2024Article
- Peer Support and Beyond: The Role of Lived Experience in a New Era of Eating Disorder Treatment.Focus (American Psychiatric Publishing) · 2024Article
- Psychosocial and financial impacts for carers of those with eating disorders in New Zealand.Journal of eating disorders · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEating disorders are widely recognized as serious illnesses, with complex psychological and physiological comorbidities. Affected individuals face a protracted and challenging treatment journey which, particularly for children and adolescents, requires significant input from family members as carers. This study investigated the perspectives and experiences of those caring for family members with an eating disorder diagnosis.
methodParticipants were carers of affected individuals with an eating disorder, and were recruited from an online survey, subsequently consenting to a semi-structured qualitative interview. Inductive thematic analysis was undertaken to identify themes.
resultsMost participants in the sample were parents of affected individuals. Significant and ongoing psychological and emotional impacts were identified across the sample. The diagnosis, treatment journey and overall impact of the carer role created a situation captured by the over-arching theme 'life is different now'. Impacts profoundly influenced relationships and were felt across all aspects of life by carers, affected individuals and other family members. Heightened worry and vigilance experienced by carers continued beyond improvement or recovery.
conclusionsThis research highlighted challenging and often exhausting impacts felt by carers due to their pivotal role in eating disorder treatment. Inadequate support for most carers in this sample has clear implications for families as well as service and funding providers. Further research should more fully investigate carer experience with different eating disorders to explore the type of support necessary to build capacity and resilience to reduce carer burden.
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Registered trials
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