ArticleResearch involvement and engagement2021
Engagement with a diverse Stakeholder Advisory Council for research in dementia care.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
17 citing papers in PubMed, 19 citations in OpenAlex.
- Involving People With Dementia in Research: Contributions, Barriers and Evaluation From a Meta-Synthesis and Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Engagement of understudied populations as community change: The South Texas ADRC model.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Partnering with Latino communities for dementia research: a mixed-methods study of engagement.Research involvement and engagement · 2026Article
- Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer's disease and related dementia cohort study.Research involvement and engagement · 2026Article
- Engaging Black Women in Stress Urinary Incontinence Research Prioritization Through Intentional Recruitment and Alliance With Community Partners.Urology practice · 2025Article
- Stakeholder perceptions of dementia in Colombia: a qualitative study.BMC public health · 2025Article
- Priority setting in dementia palliative care research for people living with dementia and carers: A mixed methods consensus study.Palliative care and social practice · 2025Article
- Design and Development of a Multimodal Digital Intervention (SHIFT App) to Address Sexual Dysfunction in Hematopoietic Stem Cell Transplant (HSCT) Survivors.Transplantation and cellular therapy · 2024Article
- Multisectoral Collaborations to Increase Recruitment and Retention of Diverse Older Adults in Biomedical Research.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024Article
- Meaningful patient and public engagement in dissemination-embedding co-production in dementia research.Frontiers in dementia · 2024Article
- Lessons Learned with a Triad of Stakeholder Advisory Boards: Working with Adolescents, Mothers, and Clinicians to Design the TRUST Study.Children (Basel, Switzerland) · 2023Article
- Experiences of caregivers of community-dwelling older persons with moderate to advanced dementia in adapting the Namaste Care program: a qualitative descriptive study.Research involvement and engagement · 2022Article
- "An animated socialization without substance:" experiences of persons living with dementia through the COVID-19 pandemic.Dementia (London, England) · 2022Article
- "A Different Way to Survive": The Experiences of Family Caregivers of Persons Living With Dementia During the COVID-19 Pandemic.Journal of family nursing · 2022Article
- Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year.Research involvement and engagement · 2022Article
- A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care.Journal of patient experience · 2022Article
- Engaging multi-stakeholder perspectives to identify dementia care research priorities.Journal of patient-reported outcomes · 2021Article
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
Abstract
backgroundThe inclusion of stakeholders throughout the research process has been gaining recognition as an approach that can improve the quality and impact of research. Stakeholder engagement for dementia care research has been identified as a national priority, though evaluation of engagement strategies and their impact has been limited. In dementia care research, stakeholders can include individuals living with dementia, family care partners, and health and social care professionals in dementia care. A Stakeholder Advisory Council (SAC) was established to identify priorities for dementia care research that are most important to stakeholders. Strategies to build capacity for research and facilitate engagement among the SAC were used to identify the research priorities. This study describes the experiences of SAC members engaged in the research process.
methodsTo evaluate stakeholder engagement, semi-structured interviews were conducted with members of the SAC to understand their experiences and perspectives on the strategies used to facilitate engagement and build capacity for research. Interviews were recorded, transcribed, and thematically analyzed using a mixed inductive and deductive approach. Findings were presented to members of the SAC to determine whether they felt their perspectives and experiences were accurately represented. Final domains and themes presented here were approved by the SAC.
resultsInterviews (N = 11) were conducted with members of the SAC representing each stakeholder group; persons living with dementia (n = 2); family care partners (n = 4), and health and social care professionals in dementia care (n = 5). Ten themes were categorized into four overarching domains: accessibility, council infrastructure, values and environment, and benefits of involvement.
conclusionsFindings from this qualitative study are a resource for researchers seeking to collaborate with diverse stakeholder groups to represent their perspectives in research, including individuals living with dementia. The domains and themes identified here support the inclusion of diverse stakeholders in the research process, centering engagement and capacity building strategies around individuals living with dementia.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.