ArticleInternational journal of environmental research and public health2021
Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07639645 (Multimodal Intervention to Reduce Unwanted Loneliness and Improve the Living With Process Among Family Caregivers of People With Alzheimer's Disease), which is not on this map. Cited by 12 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Multimodal Intervention to Reduce Unwanted Loneliness and Improve the Living With Process Among Family Caregivers of People With Alzheimer's Disease
Who cites it
12 citing papers in PubMed.
- Commentary: Family caregivers and restless legs syndrome- sleep, quality of life and the need for family-centred nursing care.Journal of research in nursing : JRN · 2026Article
- Building rehabilitation care capacity for older adults living in long-term care through family/care partner and physical therapist engagement: a scoping review.BMC geriatrics · 2026Article
- Everyday life experiences of family members of individuals with restless legs syndrome: a qualitative interview study.Journal of research in nursing : JRN · 2026Article
- Management of Chronic Health Situations.Healthcare (Basel, Switzerland) · 2026Article
- Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals.JMIR cancer · 2026Article
- Level of Family Support and Associated Factors Among Pulmonary Tuberculosis Patients in Eastern Uganda. A Baseline Cross-Sectional Study.Journal of multidisciplinary healthcare · 2025Article
- Long-Term Caregiving Impact and Self-Care Strategies in Family Caregivers of People with Neuropsychiatric Disorders: A Mixed-Method Study.Diseases (Basel, Switzerland) · 2024Article
- Quality of life and unmet needs in patients with fabry disease: a qualitative study.Orphanet journal of rare diseases · 2024Review
- Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population.BMJ open · 2024Observational
- Adaptation of complex interventions for people with long-term conditions: a scoping review.Translational behavioral medicine · 2024Article
- Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver.Nursing reports (Pavia, Italy) · 2024Article
- Predictors of self-care among informal caregivers of patients with inflammatory bowel disease: a cross-sectional study.Annals of gastroenterologyArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family's needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand "the process of living with LTCs" from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.
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Registered trials
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