ArticleResearch involvement and engagement2021
Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
47 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- Shared decision-making for supporting women's decisions about breast cancer screening.The Cochrane database of systematic reviews · 2024Pooled it
- Reporting of PPI and the MCID in phase III/IV randomised controlled trials-a systematic review.Trials · 2023Pooled it
- A report on parent involvement in planning a randomised controlled trial in neonatology and lactation - insights for current and future research.International breastfeeding journal · 2022Trial
- Group Poetry and Quilt-Making -Creative Public Involvement Approaches to Contentious Concepts in Frailty Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- A global multilingual cocreation of aphasia priority topics through patient and public involvement.Research involvement and engagement · 2026Article
- Disparities associated with race and ethnicity in pain management: a scoping review.International journal of clinical pharmacy · 2026Article
- Public and Patient Involvement and Engagement in Clinical Trials: A Multi-Perspective Mixed-Methods Evaluation of the ROWTATE Programme.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient and public involvement and engagement in target trial emulation framework: a scoping review protocol.BMJ open · 2026Article
- Layering perspectives: a structured approach to meaningful patient and public involvement and engagement in the RETURN dental trial.Research involvement and engagement · 2026Article
- Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.Internet interventions · 2026Review
- Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement.Research involvement and engagement · 2026Article
- A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute.Research involvement and engagement · 2026Review
- Beyond a buzzword: the need for shared language, education, and enhanced reporting of disability inclusive co-design research.Research involvement and engagement · 2026Article
- Giving credit where credit's due - recognition of patient partners in health research.Research involvement and engagement · 2026Article
- Patient- and Public-Led Research - How Is It Defined and Practiced: A Scoping Review.Journal of patient experience · 2026Article
- The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study.Research involvement and engagement · 2025Article
- Post Hoc Consolidated Framework for Implementation Research (CFIR) Analysis of Older Person/Student Nurse Intergenerational Café Implementation.Journal of advanced nursing · 2025Article
- Working With People With Experience of Psychosis to Co-Design an Educational and Anti-Stigma Psychosis Intervention for Schools.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Creating the conditions for meaningful and effective PPIE in community-based public health research: learning from a UK-wide lived experience panel.Research involvement and engagement · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundPatient and public involvement (PPI) in health and social care research is considered important internationally, with increasing evidence that PPI improves the quality, relevance and outcomes of research. There has been a growth in research publications that describe PPI in the research process, but the frequency and detail of PPI reporting varies considerably. This paper reports on a collaborative study that aimed to describe the extent of PPI in publications from research funded by the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) in the East of England (EoE), part of the National Institute of Health Research (NIHR) in England (2014-2019).
methodsA descriptive study of all research publications (1st January 2014 to 31st October 2017) funded by the NIHR CLAHRC EoE. Members of the Public Involvement in Research group (PIRg), at the University of Hertfordshire, were actively involved, with four PIRg co-researchers. We used an internationally recognised reporting checklist for PPI called the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public, Version 2) to guide the reviewing process.
resultsOut of 148 research papers identified, 16 (14%) reported some aspect of PPI activity and were included for review. Ten of the publications (63%) acknowledged the contributions of PPI individuals and/or groups and five had PPI co-authors. There was considerable variation in the PPI reported in the publications, with some 'missed opportunities' to provide detail of PPI undertaken. The perspectives of the co-researchers shaped the reporting of the results from this study. The co-researchers found the GRIPP2-SF (short form) to be useful, but the GRIPP2-LF (long form) was considered over complicated and not user-friendly.
conclusionsThis is one of the first studies to involve lay co-researchers in the review of PPI reporting using the GRIPP2 reporting checklists (GRIPP2-SF and GRIPP2-LF). We make recommendations for a revised version of the GRIPP2-SF, with clearer instructions and three additional sections to record whether PPI is reported in the abstract or key words, in the acknowledgements section, and whether there are PPI co-authors. We also recommend the provision of training and support for patient and public peer reviewers.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.