ArticleAutism : the international journal of research and practice2022
Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families.
Article in Autism : the international journal of research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 21 citations in OpenAlex.
- Correlates of Anxiety in Children and Adults With Moderate to Profound Intellectual Disability.Journal of autism and developmental disorders · 2026Article
- Article
- Autism related traits and anxiety in the general population are linked through intolerance of uncertainty and affect labeling.Scientific reports · 2026Article
- Parent-reported experiences of in-laboratory polysomnography in children with neurodevelopmental disorders: A cross-sectional multi-centre study.Sleep & breathing = Schlaf & Atmung · 2025Article
- Intolerance of Uncertainty and Anxiety (but not Alexithymia) Mediate the Association Between Autistic Traits and Quality of Life.Journal of autism and developmental disorders · 2025Article
- The association between intolerance of uncertainty and psychological burden among caregivers of children with autism and the impact on their quality of life.Frontiers in psychiatry · 2025Article
- Using Q-sort method to explore autistic students' views of the impacts of their anxiety at school.Autism : the international journal of research and practice · 2024Article
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Authors and funding
11 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractAnxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.
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