ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Shared decision-making in standardized cancer patient pathways in Norway-Narratives of patient experiences.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed, 20 citations in OpenAlex.
- Navigating the cancer trajectory in colorectal cancer: perceptions of cure over care, efficiency, and limited emotional support.Journal of cancer survivorship : research and practice · 2026Article
- Colorectal cancer patients' experiences with antineoplastic agents from the perspective of their significant others: a longitudinal qualitative study.International journal of clinical pharmacy · 2026Article
- Patient experiences with collaborative practices between primary and specialized care in Norwegian cancer pathways: a qualitative study.BMC health services research · 2025Article
- Experiences and Perceptions of People With Advanced Cancer and Their Family Caregivers of Shared Decision-Making in Palliative Cancer Care.Journal of advanced nursing · 2025Article
- Is shared decision making an aspect of palliative care integration? An observation of collaboration between oncologists and palliative care professionals.BMC palliative care · 2024Observational
- Effect of cancer waiting time standards in the English National Health Service: a threshold analysis.BMC health services research · 2024Article
- Lost in the loop - a qualitative study on patient experiences of care in standardized cancer patient pathways.BMC health services research · 2023Article
- Performance of standardized cancer patient pathways in Sweden visualized using observational data and a state-transition model.Scientific reports · 2023Article
- Mapping Choice of Healthcare Institutes for Cancer Care: A Study in Northeast India.Asian Pacific journal of cancer prevention : APJCP · 2023Article
- Deconstructing (e)health literacy: aspects that promote and inhibit understanding of health information in breast cancer patient pathways.International journal of qualitative studies on health and well-being · 2022Article
- Shared decision-making in standardized cancer patient pathways in Norway-Narratives of patient experiences.Health expectations : an international journal of public participation in health care and health policy · 2021Article
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCancer patient pathways (CPPs) were implemented in Norway in 2015-2017 to advance cancer diagnostics and treatment initiation. The aim of CPPs is to ensure standardized waiting times, but also to strengthen patient participation and shared decision-making. This study investigates how patients enrolled in a CPP experienced shared decision-making.
methodsThis study comprised of 19 individual semistructured interviews with patients who had been enrolled in a CPP at three hospitals in Norway. Twelve patients had breast cancer, four patients had prostate cancer and three patients had malignant melanoma. We analyzed their experiences using a narrative approach.
findingsThis study showed how participating in a standardized CPP provided different possibilities for shared decision-making. The patients' narratives of shared decision-making in CPPs included stories from the three cancer diagnoses through the following themes: (1) The predictable safeness of standardizations, (2) the ambivalence of making decisions and (3) opposing standardizations and pushing for action.
conclusionStandardized CPPs provided patients with predictability and safety. Shared decision-making was possible when the cancer diagnoses supported preference-sensitive treatment options. Balancing standardizations with individualized care is necessary to facilitate patient participation in CPPs, and the possibility of shared decision-making needs to be discussed for each specific CPP. PATIENT OR PUBLIC CONTRIBUTION: A service user representative from the Norwegian Cancer Society participated in designing this study.
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