ReviewHealth expectations : an international journal of public participation in health care and health policy2021
Research- and health-related youth advisory groups in Canada: An environmental scan with stakeholder interviews.
Review in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Involvement of children and young people in the conduct of health research: A rapid umbrella review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Review
- The way we do things matters: the deep integration of lived experience in the a/part of the crowd project to respond to loneliness in young adults.Research involvement and engagement · 2026Article
- Engaging and strengthening youth through international community-based research: Implementation and evaluation of an International Youth Advisory Board.American journal of community psychology · 2025Article
- Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru.Research involvement and engagement · 2025Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- Partnering With Youth to Enhance Healthcare Access and Experience: Lessons Learned From a Teen Advisory Group.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan.Journal of patient-reported outcomes · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Article
- The League: A person-centred approach to the development of social robotics for paediatric anxiety.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council.Health care transitions · 2024Article
- Evaluating the effect of a 12-month youth advisory group on adolescent's leadership skills and perceptions related to chronic disease prevention research: a mixed-methods study.BMC public health · 2023Article
- 'Just because we're younger doesn't mean our opinions should be any less valued': A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Evaluation of a stakeholder advisory board for an adolescent mental health randomized clinical trial.Research involvement and engagement · 2023Article
- Different in so many ways: Exploring consumer, health service staff, and academic partnerships in a research advisory group through rapid ethnography.Australian occupational therapy journal · 2022Article
- Refining a capability development framework for building successful consumer and staff partnerships in healthcare quality improvement: A coproduced eDelphi study.Health expectations : an international journal of public participation in health care and health policy · 2022Review
- Development of an adolescent advisory group to inform sexual and reproductive health research for first- and second-generation immigrant adolescents in Canada: A community-based participatory action research study.Frontiers in reproductive health · 2022Article
- Research- and health-related youth advisory groups in Canada: An environmental scan with stakeholder interviews.Health expectations : an international journal of public participation in health care and health policy · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEngaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues.
objectiveThis study aimed to identify research- and health-related youth advisory groups ('groups') in Canada and understand the best practices of these groups.
methodsGoogle searches and supplementary methods were used to identify relevant groups in Canada. Group information was extracted from websites or through interviews with key informants.
resultsWe identified 40 groups. Groups were commonly part of a hospital/healthcare facility, nonprofit/health organization or research group. The majority focused on a specific content area, most commonly, mental health. Over half the groups advised on health services. Members' ages ranged from 9 to 35 years. The number of members ranged from 5 to 130. Interviews (n = 12) identified seven categories relating to group practices: (a) group purpose/objectives, (b) group development, (c) group operations, (d) group structure, (e) adult involvement, (f) membership and recruitment and (g) group access. Challenges and facilitators to the success of groups were described within the following themes: (a) retaining engagement, (b) creating a safe environment and (c) putting youth in positions of influence. Advice and recommendations were provided regarding the development of a new group.
conclusionThis study provides a comprehensive overview of research- and health-related youth advisory groups in Canada. This information can be used to identify groups that stakeholders could access as well as inform the development of a new group. PATIENT OR PUBLIC CONTRIBUTION: Youth advisory group representatives were interviewed as part of the study.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.