ArticleJournal of general internal medicine2022
A Race to the End: Family Caregivers' Experience of Medical Assistance in Dying (MAiD)-a Qualitative Study.
Article in Journal of general internal medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
16 citing papers in PubMed.
- Supporting a Different Type of Death: Experiences of Family Members of Recipients of Medical Assistance in Dying.Nursing open · 2026Article
- 'It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number'. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Family perspectives on high-quality MAiD service and delivery: a cross-Canada qualitative descriptive study.BMC palliative care · 2026Article
- Early experiences of the End of Life Choice Act 2019 amongst assisted dying practitioners in Aotearoa New Zealand.BMC palliative care · 2025Article
- Caregiver accompaniment and non-abandonment in voluntary assisted dying: Phenomenological analysis.Palliative & supportive care · 2025Article
- Exploring the early experiences of assisted dying in Aotearoa New Zealand: a qualitative study protocol.BMJ open · 2024Article
- "Walk me through the final day": A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day.Palliative medicine · 2024Article
- Mapping MAiD Discordance: A Qualitative Analysis of the Factors Complicating MAiD Bereavement in Canada.Qualitative health research · 2024Article
- "The Razor's Edge of Timing:" A Phenomenological Analysis of Decision-Making Processes Surrounding Medical Aid in Dying.International journal of public health · 2024Article
- Views, Attitudes and Challenges When Supporting a Family Member in Their Decision to Travel to Switzerland to Receive Aid-In-Dying.International journal of public health · 2024Article
- Relatives' Experiences of Being Involved in Assisted Dying: A Qualitative Study.Qualitative health research · 2023Article
- Walking Alongside: Views of Family Members on Medical Assistance in Dying for Mental Illness as the Sole Underlying Medical Condition.Qualitative health research · 2023Article
- Voluntary Assisted Dying/Euthanasia: Will This Have an Impact on Cancer Care in Future Years?Current treatment options in oncology · 2023Review
- The impact of COVID-19 on the experiences of patients and their family caregivers with medical assistance in dying in hospital.BMC palliative care · 2023Article
- The impact on patients of objections by institutions to assisted dying: a qualitative study of family caregivers' perceptions.BMC medical ethics · 2023Article
- Article
Corrections and comments
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe June 2016 legalization of medical assistance in dying (MAiD) provided an added layer of choice to end-of-life care in Canada. Family caregivers play an important role in patient end-of-life decision-making. They may experience unique psychological burden or distress associated with their role. However, we know little about the caregiver experience associated with patient MAiD requests and the nature of psychosocial supports caregivers require before, during, and following MAiD intervention.
objectiveThe objective of this study is to better understand the caregiver experience of MAiD within the Canadian legal landscape following Bill C-14.
designCaregiver experience was examined based on qualitative, semi-structured interviews.
participantsA total of 22 caregivers of patients who had requested MAiD were interviewed. APPROACH: Transcripts were recorded, transcribed, and analyzed based on grounded theory methodology. KEY
resultsThe caregiver experience of MAiD within the legal framework was found to be understood as a "race to the end," with the ultimate goal of creating an ideal dying experience for the patient while balancing a threat to capacity that would undermine their access to MAiD. Caregivers can be described within the overarching framework as either co-runners or onlookers. Sources of caregiver distress were linked to these roles.
conclusionsThe "race to the end" theoretical model contributes new knowledge and understanding that can inform the development of tailored support services for caregivers, the impact of legislative changes on this population, and future research examining decision-making near end of life and the caregiver experience.
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