ArticleBMJ open2021
Familial experience of acute bacterial meningitis in children: a transversal qualitative study using interpretative phenomenological analysis.
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it, 5 citations in OpenAlex.
- Experiences and service-uptake factors of receiving and providing care for meningitis and its sequelae: a qualitative systematic review.BMC medicine · 2026Pooled it
- "You're listening but you're not hearing": qualitative exploration of parents' lived experience of paediatric sepsis.Frontiers in pediatrics · 2025Article
- Follow-up care experience of patients with invasive meningococcal disease and their family caregivers: a qualitative study.BMC infectious diseases · 2024Article
- Lived experiences of families of meningitis patients and survivors in the Upper West Region of Ghana.PLOS global public health · 2024Article
- Epidemiology and Clinical Burden of Meningococcal Disease in France: Scoping Review.Journal of clinical medicine · 2023Article
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo capture the subjective experience of close family ascendants of acute bacterial meningitis survivors and to explore how they give meaning to this specific experience.
designA qualitative study of indepth interviews using interpretative phenomenological analysis. PRIMARY OUTCOME: Main meaning-making processes of participants' experience. SETTINGS: Participants were recruited through two associations of people affected by meningitis and their family ascendants.
participantsConvenience sampling of 11 women whose children or grandchildren were between 0.2 and 20 years old at the time of their meningitis diagnosis (M=4.06, SD=7.3). On average, 9.39 (SD=5.4) years had passed between the onset of illness and the interview.
resultsSix superordinate themes (meningitis disease; healthcare services and professionals; knowledge/ignorance; repercussions of the meningitis experience: 'life afterwards'; sick child attitudes/behaviour; and sibling attitudes/behaviour) and two main meaning-making processes in relation to participants' experience of meningitis were identified: (1) the sick child becoming a 'hero': comparison with other children; and (2) engaging action/attitude: finding the 'positive' of the traumatic experience and engaging action to improve the care system. These two processes underpin the psychological adjustment to meningitis and its consequences.
conclusionsThis study provides a unique insight into close family members' first-hand experience with acute bacterial meningitis. Findings highlighted factors characterising the disease experience, the psychological adjustment of meningitis survivors' families and their meaning-making processes. These findings are important for research and clinical practice, demonstrating the multidimensional impact of the disease on family ascendants, their need for professional psychological support and the importance of direct involvement of parents in identifying key aspects of care.
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