ArticleJournal of the American Medical Informatics Association : JAMIA2021
Patient-led data sharing for clinical bioinformatics research: USCDI and beyond.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- A comparison of Fast Healthcare Interoperability Resources and Observational Medical Mutcomes Partnership electronic health record data within the All of Us Research Program.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Extended Grammar of Systematized Nomenclature of Medicine - Clinical Terms for Semantic Representation of Clinical Data: Methodological Study.Journal of medical Internet research · 2026Article
- Automated and interoperable methods for generalizable development of clinical machine-learning models for predicting neuromorbidity in critically ill children.medRxiv : the preprint server for health sciences · 2025Article
- Beyond compliance with the 21st Century Cures Act Rule: a patient controlled electronic health information export application programming interface.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Current Health Data Standardization Project and Future Directions to Ensure Interoperability in Korea.Healthcare informatics research · 2024Article
- Cardiovascular Care Innovation through Data-Driven Discoveries in the Electronic Health Record.The American journal of cardiology · 2023Review
- The Need for Data Standards and Implementation Policies to Integrate CGM Data into the Electronic Health Record.Journal of diabetes science and technology · 2023Review
- Climate change, security, privacy, and data sharing: Important areas for advocacy and informatics solutions.Journal of the American Medical Informatics Association : JAMIA · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
The 21st Century Cures Act, passed in 2016, and the Final Rules it called for create a roadmap for enabling patient access to their electronic health information. The set of data to be made available, as determined by the Office of the National Coordinator for Health IT through the US Core Data for Interoperability expansion process, will impact the value creation of this improved data liquidity. In this commentary, we look at the potential for significant value creation from USCDI in the context of clinical bioinformatics research and advocate for the research community's involvement in the USCDI process to propel this value creation forward. We also describe 1 mechanism-using existing required APIs for full data export capabilities-that could pragmatically enable this value creation at minimal additional technical lift beyond the current regulatory requirements.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.