Evidence map›Paper›PMID 34271462›Full record

ArticleInternational journal of nursing studies2021

Balancing the needs of individuals and services in cancer treatment for people with dementia: A focused ethnographic study.

Alys Wyn Griffiths, Laura Ashley, Rachael Kelley, Fiona Cowdell, Michelle Collinson, Ellen Mason, Hayley Inman, Ann Henry, Amanda Farrin, Claire Surr

Open access · hybridAbstract read
In one paragraph

Article in International journal of nursing studies, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
2.6field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 13 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Comorbid Dementia and Cancer Therapy Decision-Making: A Scoping Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
  4. Article
  5. Understanding the cultural environment of the outpatient care setting for patients with dementia receiving cancer treatment: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Alys Wyn GriffithsLeeds Beckett University, Leeds, United Kingdom. Electronic address: Alys.Griffiths@leedsbeckett.ac.uk.
Laura AshleyLeeds Beckett University, Leeds, United Kingdom.
Rachael KelleyLeeds Beckett University, Leeds, United Kingdom.
Fiona CowdellBirmingham City University, Birmingham, United Kingdom.
Michelle CollinsonLeeds Institute of Clinical Trials Research, University of Leeds, United Kingdom.
Ellen MasonLeeds Institute of Clinical Trials Research, University of Leeds, United Kingdom.
Hayley InmanBradford Teaching Hospitals NHS Foundation Trust, Bradford, United Kingdom.
Ann HenryLeeds Teaching Hospitals NHS Trust, Leeds, United Kingdom.
Amanda FarrinLeeds Institute of Clinical Trials Research, University of Leeds, United Kingdom.
Claire SurrLeeds Beckett University, Leeds, United Kingdom.
Leeds Beckett University · GBUniversity of Leeds · GBBirmingham City University · GBBradford Teaching Hospitals NHS Foundation Trust · GBLeeds Teaching Hospitals NHS Trust · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundManaging multiple conditions is difficult for patients and their families, increasing complexity in care. Two of the most common long-term conditions, cancer and dementia, both disproportionately affect older adults. However, little is known about the needs and experiences of those living with both conditions, which could inform practice in the area.

objectivesThis focused ethnographic study sought to understand how oncology services balance the unique and complex needs of these patients with those of the service more widely.

designFocused ethnography.

settingTwo National Health Service hospital trusts.

participantsSeventeen people with dementia and cancer, 22 relatives and 19 staff members participated.

methodsParticipant observation, informal conversations, semi-structured interviews, and medical notes review.

resultsImproved satisfaction and outcomes of care were reported when staff were delivering person-centred care. Staff tried to balance the need for personalised and flexible support for individuals with dementia with managing targets and processes of cancer care and treatment. The importance of continuity of people, places, and processes was consistently highlighted.

conclusionNavigating and managing the delicate balance between the needs of the individual and the needs of services more widely was difficult for both staff and patients. Improved awareness, identification and documentation of dementia would help to ensure that staff are aware of any specific patient needs. Consistency in staffing and appointment locations should develop familiarity and routine for people with dementia.

Indexed as

DementiaNeoplasmsAgedAnthropology, CulturalCommunicationHumansState MedicineCancerDementiaMultimorbidityOlder peopleOncology servicesQualitative research

Identifiers

PMID34271462
PMCPMC8404043
OpenAlexW3176029264

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.