ArticleJournal of medical Internet research2021
How Patient Work Changes Over Time for People With Multimorbid Type 2 Diabetes: Qualitative Study.
Article in Journal of medical Internet research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Everyday social contexts influence fluctuations into and out of chronic pain: an ethnographic study in England.BMJ open · 2026Article
- Experiences and perspectives by family caregivers on a palliative care journey: A case report from India.Palliative care and social practice · 2025Article
- Home self-management of type 2 diabetes with diabetes technologies in northern France: a focused ethnographic study protocol.BMJ open · 2024Article
- Identifying daily activities of patient work for type 2 diabetes and co-morbidities: a deep learning and wearable camera approach.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Consumer workarounds during the COVID-19 pandemic: analysis and technology implications using the SAMR framework.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Stakeholder Perspectives on Clinical Decision Support Tools to Inform Clinical Artificial Intelligence Implementation: Protocol for a Framework Synthesis for Qualitative Evidence.JMIR research protocols · 2022Article
- Patient Work Personas of Type 2 Diabetes-A Data-Driven Approach to Persona Development and Validation.Frontiers in digital health · 2022Article
- Exploring the characteristics of conversational agents in chronic disease management interventions: A scoping review.Digital healthArticle
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe experiences of patients change throughout their illness trajectory and differ according to their medical history, but digital support tools are often designed for one specific moment in time and do not change with the patient as their health state changes. This presents a fragmented support pattern where patients have to move from one app to another as they move between health states, and some subpopulations of patients do not have their needs addressed at all.
objectiveThis study aims to investigate how patient work evolves over time for those living with type 2 diabetes mellitus and chronic multimorbidity, and explore the implications for digital support system design.
methodsIn total, 26 patients with type 2 diabetes mellitus and chronic multimorbidity were recruited. Each interview was conducted twice, and interviews were transcribed and analyzed according to the Chronic Illness Trajectory Model.
resultsFour unique illness trajectories were identified with different patient work goals and needs: living with stable chronic conditions involves patients seeking to make patient work as routinized and invisible as possible; dealing with cycles of acute or crisis episodes included heavily multimorbid patients who sought support with therapy adherence; responding to unstable changes described patients currently experiencing rapid health changes and increasing patient work intensity; and coming back from crisis focused on patients coping with a loss of normalcy.
conclusionsPatient work changes over time based on the experiences of the individual, and its timing and trajectory need to be considered when designing digital support interventions. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.1136/bmjopen-2018-022163.
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