ArticleJournal of autism and developmental disorders2022
Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
15 citing papers in PubMed.
- Understanding Barriers to Caregiver Support Engagement During Their Autistic Youth's Transition to Adulthood: A Qualitative Analysis of Parental Perspectives.Journal of autism and developmental disorders · 2026Article
- A Scoping Review of Caregiver Worries of Transition-Aged Autistic Youth.Journal of autism and developmental disorders · 2026Article
- Experiences and needs of mothers concerning their involvement in the life and care of their adult sons with mild intellectual disabilities and autism spectrum disorders who display challenging behaviour and live in residential facilities.International journal of developmental disabilities · 2026Article
- Quality of life in caregivers of toddlers with autism features.Research in developmental disabilities · 2025Article
- Psychological and spiritual well-being of adolescents with autism spectrum disorder in Ghana.BMC psychiatry · 2025Article
- Intolerance of Uncertainty and Anxiety (but not Alexithymia) Mediate the Association Between Autistic Traits and Quality of Life.Journal of autism and developmental disorders · 2025Article
- Quality of Life in Hungarian Parents of Autistic Individuals.Journal of autism and developmental disorders · 2025Article
- "…in the middle of nowhere…" Access to, and quality of, services for autistic adults from parents' perspectives: a qualitative study.Frontiers in psychiatry · 2024Article
- Targeting the circadian modulation: novel therapeutic approaches in the management of ASD.Frontiers in psychiatry · 2024Review
- Article
- Nurturing the Positive Mental Health of Autistic Children, Adolescents and Adults alongside That of Their Family Care-Givers: A Review of Reviews.Brain sciences · 2023Review
- Preliminary Assessment of the Quality of Life and Daily Burden of Caregivers of Persons with Special Needs: A Questionnaire-Based, Cross-Sectional Survey.International journal of environmental research and public health · 2023Article
- Health-related quality of life in family caregivers of autistic adults.Frontiers in psychiatry · 2023Article
- The Scholarly Neglect of Black Autistic Adults in Autism Research.Autism in adulthood · 2022Article
- The impact of informal care provision on the quality of life of adults caring for persons with mental health problems: A cross-sectional assessment of caregiver quality of life.Health psychology openArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.