Evidence map›Paper›PMID 34252259›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2021

Talking the same language on patient empowerment: Development and content validation of a taxonomy of self-management interventions for chronic conditions.

Carola Orrego, Marta Ballester, Monique Heymans, Estela Camus, Oliver Groene, Ena Niño de Guzman, Hector Pardo-Hernandez, Rosa Sunol, COMPAR-EU Group

Open access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
3.8field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.

  1. Pooled it
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  12. Nonpharmacological management of psychological distress in people with COPD.European respiratory review : an official journal of the European Respiratory Society · 2023
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  16. Talking the same language on patient empowerment: Development and content validation of a taxonomy of self-management interventions for chronic conditions.Health expectations : an international journal of public participation in health care and health policy · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 5 countries.

Carola OrregoAvedis Donabedian Research Institute (FAD), Barcelona, Spain.ORCID 0000-0002-2978-6268
Marta BallesterAvedis Donabedian Research Institute (FAD), Barcelona, Spain.
Monique HeymansNetherlands Institute for Health Services Research (NIVEL).
Estela CamusAvedis Donabedian Research Institute (FAD), Barcelona, Spain.
Oliver GroeneOPTIMEDIS.
Ena Niño de GuzmanIberoamerican Cochrane Centre - Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain.
Hector Pardo-HernandezIberoamerican Cochrane Centre - Biomedical Research Institute Sant Pau (IIB Sant Pau), Barcelona, Spain.
Rosa SunolAvedis Donabedian Research Institute (FAD), Barcelona, Spain.
COMPAR-EU Group
Universitat Autònoma de Barcelona · ESIberoamerican Cochrane Centre · ESKnowledge Foundation · SELondon School of Hygiene & Tropical Medicine · GBNetherlands Institute for Health Services Research · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextThe literature on self-management interventions (SMIs) is growing exponentially, but it is characterized by heterogeneous reporting that limits comparability across studies and interventions. Building an SMI taxonomy is the first step towards creating a common language for stakeholders to drive research in this area and promote patient self-management and empowerment.

objectiveTo develop and validate the content of a comprehensive taxonomy of SMIs for long-term conditions that will help identify key characteristics and facilitate design, reporting and comparisons of SMIs.

methodsWe employed a mixed-methods approach incorporating a literature review, an iterative consultation process and mapping of key domains, concepts and elements to develop an initial SMI taxonomy that was subsequently reviewed in a two-round online Delphi survey with a purposive sample of international experts.

resultsThe final SMI taxonomy has 132 components classified into four domains: intervention characteristics, expected patient/caregiver self-management behaviours, outcomes for measuring SMIs and target population characteristics. The two-round Delphi exercise involving 27 international experts demonstrated overall high agreement with the proposed items, with a mean score (on a scale of 1-9) per component of 8.0 (range 6.1-8.8) in round 1 and 8.1 (range 7.0-8.9) in round 2.

conclusionsThe SMI taxonomy contributes to building a common framework for the patient self-management field and can help implement and improve patient empowerment and facilitate comparative effectiveness research of SMIs. Patient or public contribution. Patients' representatives contributed as experts in the Delphi process and as partners of the consortium.

Indexed as

Self-ManagementChronic DiseaseDelphi TechniqueExerciseHumansLanguagePatient Participationchronic diseasescomparative effectivenessintervention reportingpatient-centred carepatient empowermentself-management

Identifiers

PMID34252259
PMCPMC8483213
OpenAlexW3182484434

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.