ArticleProceedings of the SIGCHI conference on human factors in computing systems. CHI Conference2021
"Taking care of myself as long as I can": How People with Dementia Configure Self-Management Systems.
Article in Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 46 citations in OpenAlex.
- Disintegrating ipseity: a gerontological exegesis of Alzheimer's disease and relational identity in Alice Munro's fiction.Philosophy, ethics, and humanities in medicine : PEHM · 2026Article
- An account of personal autonomy for people living with dementia.The Gerontologist · 2025Article
- Associations among self-reported oral health and intrinsic capacity domains in U.S. older adults: analysis from NHANES 2009-2014.Clinical oral investigations · 2025Article
- Self-reported quality of life in progressive cognitive decline-let's not throw the baby out with the bathwater.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- A systematic review on patient and public attitudes toward health monitoring technologies across countries.NPJ digital medicine · 2025Article
- Tracking and its Potential for Older Adults with Memory Concerns.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2025Article
- HCI and Older Adults: The Critical Turn and What Comes Next.Foundations and trends in human computer interaction · 2025Article
- Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives.Dementia (London, England) · 2024Article
- Assistive Technology to Support Dementia Management: Protocol for a Scoping Review of Reviews.JMIR research protocols · 2024Article
- Using an Empathetic Approach to Explore Technology Readiness and Needs for Digital Services to Assist People with Dementia.International journal of environmental research and public health · 2024Article
- Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and Treatment.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2024Article
- ChatGPT vs Google for Queries Related to Dementia and Other Cognitive Decline: Comparison of Results.Journal of medical Internet research · 2023Article
- Understanding Contexts and Challenges of Information Management for Epilepsy Care.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2023Article
- Mobile Phone Use by People with Mild to Moderate Dementia: Uncovering Challenges and Identifying Opportunities: Mobile Phone Use by People with Mild to Moderate Dementia.ASSETS. Annual ACM Conference on Assistive Technologies · 2022Article
- The Human Need for Equilibrium: Qualitative Study on the Ingenuity, Technical Competency, and Changing Strategies of People With Dementia Seeking Health Information.Journal of medical Internet research · 2022Article
- Barriers to Online Dementia Information and Mitigation.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2022Article
- Investigating the Potential of Artificial Intelligence Powered Interfaces to Support Different Types of Memory for People with Dementia.Extended abstracts on Human factors in computing systems. CHI Conference · 2022Article
- Evaluating an interactive tool that reasons about quality of life to support life planning by older people.Digital healthArticle
- Designing technology to support greater participation of people living with dementia in daily and meaningful activities.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
Self-management research in HCI has addressed a variety of conditions. Yet, this literature has largely focused on neurotypical populations and chronic conditions that can be managed, leaving open questions of what self-management might look like for populations with progressive cognitive impairment. Grounded in interviews with seventeen technology savvy people with mild to moderate dementia, our analysis reveals their use of technological and social resources as part of the work of self-management. We detail how participants design self-management systems to enable desired futures, function well in their social world, and maintain control. Our discussion broadens the notion of self-management to include future-oriented, sociotechnical, self-determinate design. We advocate for expanding the way technologists, designers, and HCI scholars view people with mild to moderate dementia to recognize them as inventive creators and capable actors in self-management.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.