Evidence map›Paper›PMID 34247327›Full record

SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2022

Self-reported quality of life following stroke: a systematic review of instruments with a focus on their psychometric properties.

Lisa J Cameron, Kylie Wales, Angela Casey, Shannon Pike, Laura Jolliffe, Emma J Schneider, Lauren J Christie, Julie Ratcliffe, Natasha A Lannin

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Measurement properties of the EQ-5D in populations with a mean age of ≥ 75 years: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Pooled it
  3. Measurement properties and interpretability of the PROMIS item banks in stroke patients: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Pooled it
  4. Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Trial
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  6. Article
  7. Observational
  8. Article
  9. Quality of life measures for people following stroke: a structured content review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Review
  10. The Short Form 6 Dimensions (SF-6D): Development and Evolution.Applied health economics and health policy · 2025
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Lisa J CameronAlfred Health, Melbourne, Australia.ORCID http://orcid.org/0000-0001-7029-8437
Kylie WalesSchool of Health Sciences, College of Health, Medicine and Wellbeing, The University of Newcastle, Callaghan, Australia.ORCID http://orcid.org/0000-0002-3816-3126
Angela CaseySchool of Nursing and Midwifery, La Trobe University, Bundoora, Australia.
Shannon PikeWagga Wagga Ambulatory Rehabilitation Service, Murrumbidgee Local Health District, Wagga Wagga, Australia.ORCID http://orcid.org/0000-0001-5293-6247
Laura JolliffeAlfred Health, Melbourne, Australia.ORCID http://orcid.org/0000-0002-1369-9442
Emma J SchneiderOccupational Therapy Department, Alfred Health, Melbourne, Australia.ORCID http://orcid.org/0000-0001-9645-5429
Lauren J ChristieAllied Health Research Unit and Nursing Research Institute, St Vincent's Health Network Sydney, Darlinghurst, Australia.ORCID http://orcid.org/0000-0003-4900-5614
Julie RatcliffeHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, Adelaide, Australia.ORCID http://orcid.org/0000-0001-7365-1988
Natasha A LanninSchool of Allied Health, Human Services and Sport (Occupational Therapy), La Trobe University, Bundoora, Australia. Natasha.Lannin@monash.edu.ORCID http://orcid.org/0000-0002-2066-8345

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo evaluate the psychometric properties of common health-related quality-of-life instruments used post stroke and provide recommendations for research and clinical use with this diagnostic group.

methodsA systematic review of the psychometric properties of the five most commonly used quality-of-life measurement tools (EQ-5D, SF-36, SF-6D, AQoL, SS-QOL) was conducted. Electronic searches were performed in MEDLINE, CINAHL, and EMBASE on November 27th 2019. Two authors screened papers against the inclusion criteria and where consensus was not reached, a third author was consulted. Included papers were appraised using the COnsensus-based Standards for the selection of health status Measurement INstruments (COSMIN) checklist and findings synthesized to make recommendations.

resultsA total of n = 50,908 papers were screened and n = 45 papers reporting on 40 separate evaluations of psychometric properties met inclusion criteria (EQ-5D = 19, SF-36 = 16, SF-6D = 4, AQoL = 2, SS-QOL = 4). Studies reported varied psychometric quality of instruments, and results show that psychometric properties of quality-of-life instruments for the stroke population have not been well established. The strongest evidence was identified for the use of the EQ-5D as a quality-of-life assessment for adult stroke survivors.

conclusionsThis systematic evaluation of the psychometric properties of self-reported quality-of-life instruments used with adults after stroke suggests that validity across tools should not be assumed. Clinicians and researchers alike may use findings to help identify the most valid and reliable measurement instrument for understanding the impact of stroke on patient-reported quality of life.

Indexed as

Health StatusQuality of LifeAdultHumansPsychometricsReproducibility of ResultsSelf ReportSurveys and QuestionnairesNeuroscienceOutcome measuresQuality of lifeRehabilitationStrokeValidity

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.