Evidence map›Paper›PMID 34247302›Full record

ArticleJournal of autism and developmental disorders2023

"Sometimes I Feel Grateful…": Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia.

Shin Ying Chu, Siti Nur Zafirah Binti Kassim, Chun Hong Gan, Veronica Fierro, Caryn Mei Hsien Chan, Deborah Hersh

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Close Relationships Despite the Challenges: Sibling Relationships and Autism.Journal of autism and developmental disorders · 2025
    Article
  5. Experiences of siblings of individuals with autism spectrum disorders.International journal of developmental disabilities · 2025
    Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Shin Ying ChuFaculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia. chushinying@ukm.edu.my.ORCID http://orcid.org/0000-0002-3558-0477
Siti Nur Zafirah Binti KassimFaculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
Chun Hong GanFaculty of Health Sciences, Centre for Rehabilitation and Special Needs, Clinical Psychology and Behavioral Health Programme , Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
Veronica FierroDepartment of Communication Sciences and Disorders, Rockhurst University, 1100 Rockhurst Road, Kansas City, MO, 64110, USA.
Caryn Mei Hsien ChanFaculty of Health Sciences, Centre for Community Health Sciences (ReaCH), Health Education Programme , Universiti Kebangsaan Malaysia , Jalan Raja Muda Abdul Aziz, 50300, Kuala Lumpur, Malaysia.
Deborah HershSchool of Medical and Health Sciences, Edith Cowan University, 270 Joondalup Drive, Joondalup, WA, 6027, Australia.ORCID https://orcid.org/0000-0003-2466-0225

Funding

UKM incentive grant GP-2020-K021244
6 · The paper itself

Abstract

Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents' needs and how they may be best supported, informing the practice of speech-language pathology and other health professions.

Indexed as

Autism Spectrum DisorderSiblingsAdolescentChildEmotionsHumansMalaysiaMaleSibling RelationsAutismChallengesCommunicationInterviewSiblings

Identifiers

PMID34247302
PMCPMC8272616

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.