ArticleJournal of patient-reported outcomes2021
From statistics to clinics: the visual feedback of PROMIS® CATs.
Article in Journal of patient-reported outcomes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- Evaluating a web-based personalized decision report for total knee or hip replacement: Lessons learned from patients.Journal of evaluation in clinical practice · 2023Trial
- Designing oncology-specific patient-reported outcome dashboards: end-user preferences for reference curve inclusion and visualization in pediatric cancer care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- From framework to practice: applying the proteus-practice framework to learn lessons for integrating PROs in clinical care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- The hidden cost of patient feedback: analysis of a decade of NHS expenditure on orthopaedic PROMs.Journal of patient-reported outcomes · 2026Article
- Making sense of PROM outcomes: a mixed method study to optimize graphical visualization formats for children.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Observational
- Beyond symptom improvement: transdiagnostic and disorder-specific ways to assess functional and quality of life outcomes across mental disorders in adults.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2025Article
- Interpretability and Clinical Utility of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome (PEDI-PRO) Score Report.Physical & occupational therapy in pediatrics · 2025Article
- A scoping review of the electronic collection and capture of patient reported outcome measures for children and young people in the hospital setting.PLOS digital health · 2025Article
- Validation of PROMIS anxiety item bank computer adaptive test among patients with heart failure.Frontiers in cardiovascular medicine · 2025Article
- Routine use of patient-reported experience and outcome measures for children and young people: a scoping review.Systematic reviews · 2024Article
- Evaluating the Population-Based Usage and Benefit of Digitally Collected Patient-Reported Outcomes and Experiences in Patients With Chronic Diseases: The PROMchronic Study Protocol.JMIR research protocols · 2024Article
- Implementing Systematic Patient-Reported Measures for Chronic Conditions Through the Naveta Value-Based Telemedicine Initiative: Observational Retrospective Multicenter Study.JMIR mHealth and uHealth · 2024Observational
- Validity and reliability of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using computerized adaptive testing in patients with advanced chronic kidney disease.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2023Article
- Responsiveness and minimal important change of seven PROMIS computerized adaptive tests (CAT) in patients with advanced chronic kidney disease.Journal of patient-reported outcomes · 2023Article
- Validation of the pedHALHaemophilia : the official journal of the World Federation of Hemophilia · 2022Article
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Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo reduce the burden of completing Patient-Reported Outcome Measures (PROMs), PROMIS® Computerized Adaptive Tests (CATs) are being implemented in pediatric clinical practice. We aimed to develop recommendations for visual feedback options for PROMIS CATs on individual item and domain score level as an evidence-based feedback recommendation for PROMIS CATs is lacking.
methodsFocus groups were held with clinicians who use the KLIK PROM portal. Literature-based feedback options were provided to initiate group discussion. Data was analyzed using thematic coding method. Additionally, a questionnaire was sent out to assess patients' (12-18y) and parents' (child 0-18y) preference for individual item feedback. Data was analyzed using descriptive statistics.
resultsSix focus groups were held (N = 28 clinicians). Regarding individual item feedback, showing the complete item bank, with only responses to administered items in traffic light colors was preferred. For domain scores, line graphs were preferred, including numerical (T-)scores, reference and cut-off lines, and traffic light colors. Separate graphs per domain, ranked in order of importance and harmonization of directionality ('higher = better') were considered important. Questionnaire results (N = 31 patients/N = 131 parents) showed that viewing their own item responses was preferred above receiving no item feedback by 58.1% of the patients and 77.1% of the parents.
conclusionsBased on the outcomes and after discussion with the Dutch-Flemish PROMIS National Center, recommendations for PROMIS CAT feedback options were developed. PROMIS CATs can now be used in clinical practice to help clinicians monitor patient outcomes, while reducing the burden of completing PROMs for patients significantly.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.