ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022
The untold story of late effects: a qualitative analysis of breast cancer survivors' emotional responses to late effects.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Implementing exercise and self-management for women with breast cancer during treatment: results of the NEXT-BRCA randomized controlled trial.Scientific reports · 2025Trial
- Self-efficacy in the managing late sequelae in long-term breast cancer survivors in Spain.Scientific reports · 2026Article
- Group-based trajectory modeling for supportive care needs in Chinese cancer survivors: A systematic review.Asia-Pacific journal of oncology nursing · 2025Review
- Feasibility and Acceptability of a Mobile App to Improve Quality of Life of Long-Term Breast Cancer Survivors: Single-Arm Pre-Post Intervention Pilot Study.JMIR cancer · 2025Article
- A Goal Without a Plan Is Just a Wish-Creating a Personalized Aftercare Plan for Breast Cancer Patients Supported by the Breast Cancer Aftercare Decision Aid.Current oncology (Toronto, Ont.) · 2025Article
- Quality of life in long-term cancer-free breast cancer survivors in spain: A descriptive study.Scientific reports · 2025Article
- 'Balancing Challenges and Personal Resources': A Qualitative Study of Women's Experiences of Arm Impairment After Axillary Surgery for Breast Cancer.Journal of advanced nursing · 2025Article
- Health promotion nursing interventions for female breast cancer survivors: A scoping review.Journal of advanced nursing · 2025Article
- Experiencing fertility preservation in adolescence - a qualitative interview study indicating gender disparities in AYAs diagnosed with cancer.Frontiers in oncology · 2025Article
- Article
- Determinants of exercise adherence and maintenance for cancer survivors: Implementation of a community-based group exercise program. A qualitative feasibility study.PEC innovation · 2022Article
- A mixed method study of medical oncologists' perceived barriers and motivators to addressing long-term effects in breast cancer survivors.Breast cancer research and treatment · 2022Article
- Measuring female breast cancer survivors' concerns about late effects of treatment: initial development of the Concerns about Late Effects in Oncology Questionnaire (CLEO).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeBreast cancer survivors are at increased risk of adverse outcomes, called late effects, years after the completion of active treatment. Late effects can significantly impair physical functioning. The current study aimed to explore breast cancer survivors' experiences of late effects, their emotional responses to existing or potential late effects and their perceived impact.
methodsA total of 36 women treated for breast cancer in the last 10 years participated in semi-structured telephone interviews. Participant views were sought with respect to knowledge, experience, and perceived longer-term risk. A thematic analysis was conducted.
resultsFour themes emerged from the data: (1) late effects awareness, (2) framing and coping, (3) uncertainty and (4) management. There was a range of emotional responses to late effects; however, many participants reported being unaware of their risk of late effects. Participants conceptualised late effects as any long-term effect of treatment regardless of the time of onset. Women reported living with constant uncertainty and feared cancer recurrence. Many were focused on managing long-term treatment side effects, rather than late effects.
conclusionMany women undergo treatment and remain unaware of associated late effect risks. National guidelines recommend patients be informed about late effects; however, the results of this study suggest a gap between policy and practice. Evidence-based interventions are needed to equip women with strategies to physically and emotionally manage late effects.
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