Evidence map›Paper›PMID 34243682›Full record

ArticleAutism : the international journal of research and practice2022

Autism diagnosis as a social process.

Jennie Hayes, Tamsin Ford, Rose McCabe, Ginny Russell

Open access · hybridAbstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
2.7field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 33 citations in OpenAlex.

  1. Towards a shared diagnostic process: whose diagnosis is it anyway?World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026
    Article
  2. Review
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  4. Review
  5. Missed Early Intervention Opportunities for Children With Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism Research · 2025
    Article
  6. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Jennie HayesUniversity of Exeter, UK.ORCID 0000-0002-5506-797X
Tamsin FordUniversity of Cambridge, UK.
Rose McCabeCity, University of London, UK.
Ginny RussellUniversity of Exeter, UK.ORCID 0000-0002-6440-1167
University of Exeter · GBCity, University of London · GBUniversity of Cambridge · GB

Funding

Medical Research Council G108/625Wellcome TrustWellcome Trust 108676/Z/15/Z
6 · The paper itself

Abstract

lay abstractWhen a child or adult is referred for an autism diagnosis, clinicians from different backgrounds work together to make a diagnostic decision. A few studies have asked clinicians in interview how they feel about diagnosis and what the challenges are. We interviewed clinicians in child and adult assessment services in England, and from different professional backgrounds, about the challenges of autism diagnosis and the factors that might influence the assessment process. We found that there were a number of challenges in autism diagnosis, especially when someone coming for diagnosis was considered to be near the diagnostic threshold. Clinicians told us that making a diagnosis was like creating a 'narrative': looking at many different factors that told a story about a person, rather than just looking at the results of diagnostic tests. Clinicians do not always agree with the results of those tests and have to use their specialist clinical judgement to make decisions. Clinicians were concerned about the amount of time people have to wait for an autism assessment, and the resulting pressure on the assessment process. The findings of this work can help us to understand how diagnosis happens and consider ways in which it can be improved for adults, children and families coming for assessment, as well as clinicians.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdultChildEmotionsFamilyHumansNarrationautism spectrum disordersdiagnosishealth servicespolicyqualitative research

Identifiers

PMID34243682
PMCPMC8814948
OpenAlexW3180885835

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.