ArticleJournal of nephrology2022
Perspectives on ability to work from patients' receiving dialysis and caregivers: analysis of data from the global SONG initiative.
Article in Journal of nephrology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Changes in Employment Status After Initiation of Peritoneal and In-Center Hemodialysis.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2026Observational
- Impact of CKD on Life Participation in Latin America.Kidney international reports · 2026Article
- Association between Access to Alternatives to Daytime In-Center Hemodialysis and Employment among Patients with Kidney Failure.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Harnessing Social Media Data to Understand Information Needs About Kidney Diseases and Emotional Experiences With Disease Management: Topic and Sentiment Analysis.Journal of medical Internet research · 2025Article
- Understanding perceived stigma and depression symptoms in maintenance hemodialysis patients: a network perspective.Frontiers in psychology · 2025Article
- Socioeconomic Position and Health Among Children and Adolescents With CKD Across the Life-Course.Kidney international reports · 2024Review
- Financial toxicity experienced by rural Australian families with chronic kidney disease.Nephrology (Carlton, Vic.) · 2023Article
- Work participation in chronic kidney disease: action is needed to avoid accumulating health and social disadvantage for patients.Journal of nephrology · 2023Article
- Older Age is Associated With Lower Utilization of Living Donor Kidney Transplant.Kidney international reports · 2023Article
- Peritoneal Dialysis for Potential Kidney Transplant Recipients: Pride or Prejudice?Medicina (Kaunas, Lithuania) · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
15 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients receiving dialysis have low employment rates, which compounds poorer health and socioeconomic outcomes. Reasons for under- and unemployment remain underexplored. We aimed to describe the perspectives of patients receiving hemodialysis (HD) or peritoneal dialysis (PD) and their caregivers on ability to work.
methodsData was derived from adult patients' and caregivers' responses from 26 focus groups, two international Delphi surveys and two consensus workshops conducted through the Standardized Outcomes in Nephrology (SONG-HD) and SONG-PD programs. Our secondary thematic analysis identified concepts around ability to work.
resultsFive hundred four patients and 146 caregivers from 86 countries were included. We identified five themes: financial pressures and instability (with subthemes of rationing the budget with increased expenditure, losing financial independence and threatened job security); struggling to meet expectations (burdened by sociocultural norms and striving to protect independence); contending with upheaval of roles and responsibilities (forced to establish a new routine to accommodate work, symptoms disrupting work, prioritizing work and other duties, and adjusting to altered capacity to work); enabling flexibility and control (employment driving decisions about dialysis modality and schedule, workplace providing occupational safety and adaptability, requiring organizational support and planning for a future career); and finding purpose and value (accepting and redefining identity, pride and fulfillment, and protecting mental well-being).
conclusionsEmployment enabled patients to maintain their identity, independence, financial security and mental health. Symptom burden, workplace inflexibility and juggling roles are major challenges. Interventions addressing motivation, workplace flexibility and safety, and establishing goals and routines could support patients' capacities to work, thereby improving overall well-being and productivity.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.