ArticleAge and ageing2021
Implementing post-diagnostic support for people living with dementia in England: a qualitative study of barriers and strategies used to address these in practice.
Article in Age and ageing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 4 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Access to healthcare services and adherence to treatments for people with dementia among ethnic minority groups: a scoping review.Frontiers in dementia · 2026Pooled it
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Barriers for access and utilization of dementia care services in Europe: a systematic review.BMC geriatrics · 2025Pooled it
- Trial
- Challenges and needs in dementia care: people with dementia and family caregivers' experiences from diagnosis to follow-up in Swedish primary care: a qualitative study.Scandinavian journal of primary health care · 2026Article
- Primary care-based post diagnostic dementia care in England: modelling and scaling up evidence-based models for efficient future care.Age and ageing · 2026Article
- The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales.Dementia (London, England) · 2026Article
- 'Take care of it, general practitioner' - a qualitative study about barriers and needs in general practice caring for people newly diagnosed with dementia.BMC primary care · 2026Article
- Post-diagnostic care pathways in dementia: Experiences and needs of family carers and considerations for interventions.Dementia (London, England) · 2026Article
- How does Australian primary care face dementia? Identifying current practice and barriers in dementia diagnosis and management in Australian primary care - a qualitative interview study.BMC primary care · 2026Article
- Pilot of a multicomponent program for people with dementia and their care partners: Health services staff expectations, experiences and observations.Dementia (London, England) · 2026Article
- Bridging Dementia Care in Japan: The Emerging Role of General Medicine Physicians.Journal of clinical medicine · 2025Review
- Professionals' Views on Social Care Planning and Provision for People With Young-Onset Dementia and Their Families in England: Findings From the DYNAMIC Study.International journal of geriatric psychiatry · 2025Article
- End-of-life dementia care: a qualitative study of the experiences and perceptions of minority ethnic and economically disadvantaged groups.Age and ageing · 2025Article
- A Multi-Stakeholder Evaluation of a Walking Football Group for People with Dementia Developed in Partnership with a Premier League Club.Sports (Basel, Switzerland) · 2025Article
- Transforming dementia care pathway: why shifting to a universal, comprehensive, proactive, local, and integrated model is imperative to improve outcomes.Frontiers in dementia · 2025Article
- Identifying risks in dementia care: Insights from a qualitative study with clinical pharmacists.PloS one · 2025Article
- Delivering systems-level change to improve post-diagnostic dementia support: Qualitative findings from the PriDem study.PloS one · 2025Article
- The impact of game play on dementia knowledge: A student evaluation of the Dementia Inequalities Game.Dementia (London, England) · 2024Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundinequalities and gaps in post-diagnostic support (PDS) for people with dementia persist despite a policy focus on dementia in England and Wales. Understanding and overcoming the factors contributing to these inequalities is vital to improve care for people living with dementia (PLWD) and their families.
objectiveto explore common barriers to the delivery of PDS in England and Wales and describe successful strategies to address them, drawing on examples from current practice.
designqualitative semi-structured interviews, focus groups and observation. SETTINGS: Phase 1: interviewees were drawn from multiple sectors across England and Wales, including NHS clinical commissioning groups and social care. Phase 2: six case study sites based in different sectors (primary care, secondary mental health and third sector) in England.
participantsPhase 1: 61 professionals, including commissioners and service managers. Phase 2: 68 professionals, including frontline staff and those working in related services; 17 PLWD; 31 carers.
resultsbarriers to implementing PDS in dementia were an unsupportive infrastructure, limited proactive review and limited capacity and capability particularly in primary care. Strategies used successfully in practice to address these challenges included creating opportunities for service development, improving joint working, supporting non-specialists and developing ongoing, holistic review and care planning.
conclusiona range of practical strategies have been identified to address many of the common barriers to PDS in dementia. To achieve policy goals of a task-shifted and task-shared approach to PDS, widespread use of these strategies is recommended.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.