ArticleProgress in palliative care2021
Improved Parent-Child Communication following a RCT Evaluating a Legacy Intervention for Children with Advanced Cancer.
Article in Progress in palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Interventions for interpersonal communication about end of life care between health practitioners and affected people.The Cochrane database of systematic reviews · 2022Pooled it
- The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.BMC pediatrics · 2022Trial
- Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer.Journal of palliative medicine · 2021Trial
- Digital Stories Created by Children With Advanced Cancer.Journal of pediatric hematology/oncology nursingTrial
- The digital legacy in end-of-life care: unspectacular and meaningless, or not enough recognized? An online survey on the attitudes and personal experiences of professionals and volunteers.BMC palliative care · 2026Article
- Legacy-making interventions in pediatric palliative care: A mixed methods systematic review.Asia-Pacific journal of oncology nursing · 2025Review
- Social Media and the Adolescent Transplant Recipient.Pediatric transplantation · 2025Review
- Digital storytelling as a memory-making intervention for children and families in paediatric palliative care in Ireland: an adaptation study.Frontiers in public health · 2025Article
- Personal legacy and treatment choices for serious illness: a scoping review.BMJ supportive & palliative care · 2024Article
- Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review.International journal of nursing sciences · 2024Review
- Interaction-focused music therapy with cancer-affected children and their significant others: a randomized controlled feasibility study with subsequent intervention (INMUT).Pilot and feasibility studies · 2024Article
- Memory-making interventions for children and their families receiving pediatric palliative or bereavement care: A systematic review protocol.HRB open research · 2024Article
- Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review.JMIR research protocols · 2022Article
- End-of-Life Care in Patients with Cancer 16-24 Years of Age.Current oncology reports · 2022Review
- Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol.Contemporary clinical trials communications · 2021Article
- Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States.Palliative medicine reports · 2021Article
- Facebook Recruitment for Children with Advanced Cancer and Their Parents: Lessons from a Web-based Pediatric Palliative Intervention Study.Progress in palliative care · 2021Article
- Research Cooperative Groups in Pediatric Palliative Care Research.Palliative medicine reports · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
Although legacy-building is a priority for quality palliative care, research has rarely examined effects of legacy interventions in children, particularly their impact on parent-child communication.We examined the impact of a web-based legacy intervention on parent-child communication. We hypothesized that compared to usual care, legacy-making would improve quality of parent-child communication.Between 2015 and 2018, Facebook advertisements were used to recruit families of children (ages 7-17) with relapsed/refractory cancer. Parent-child dyads were randomly assigned to the intervention or usual care group. The intervention website guided children to create digital storyboards over 2 weeks by directing them to answer legacy questions about themselves and upload photographs, videos, and music. Families received a copy of the child's final digital story. Children and parents completed the Parent-Adolescent Communication Scale pre- (T1) and post-intervention (T2). Linear regressions tested for differences in change from T1 to T2 between the groups controlling for T1 values using an alpha of p < .05. Intervention effects were measured using Cohen's
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.