ArticleThe journal of headache and pain2021
The patients' perspective on the burden of idiopathic intracranial hypertension.
Article in The journal of headache and pain, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed, 38 citations in OpenAlex.
- Neurofilament light chain levels as a biomarker in idiopathic intracranial hypertension: correlations with papilledema and radiological findings.Acta neurologica Belgica · 2026Article
- "Just lose weight": weight-based medical bias and experiential expertise in intracranial hypertension.Frontiers in psychiatry · 2026Article
- Impact of caffeine consumption on headache severity, sleep quality, and psychiatric symptoms in patients with idiopathic intracranial hypertension: a cross-sectional study.The journal of headache and pain · 2025Article
- Accuracy of intracranial pressure assessment with a non-invasive transcranial doppler and arterial blood pressure method in patients with suspected idiopathic intracranial hypertension.The ultrasound journal · 2025Article
- A Systematic Review of Sleep Disturbance in Idiopathic Intracranial Hypertension.Neurology. Clinical practice · 2025Review
- Longitudinal visual outcomes in idiopathic intracranial hypertension: the role of early prognostic indicators and risk stratification in disease management.Journal of neurology · 2025Article
- The Psychological and Cognitive Landscape of Adult Idiopathic Intracranial Hypertension: A Scoping Review.Neurology. Clinical practice · 2024Article
- Metabolic Dysfunction in Idiopathic Intracranial Hypertension: Current Theories and Updates.Aging and disease · 2024Review
- Predictors of Headaches and Quality of Life in Women with Ophthalmologically Resolved Idiopathic Intracranial Hypertension.Journal of clinical medicine · 2024Article
- A Case Report Detailing a Rare Presentation of Idiopathic Intracranial Hypertension With Atypical Symptoms.Cureus · 2024Article
- Article
- MRI features of idiopathic intracranial hypertension are not prognostic of visual and headache outcome.The journal of headache and pain · 2023Article
- Treatment with GLP-1 receptor agonists is associated with significant weight loss and favorable headache outcomes in idiopathic intracranial hypertension.The journal of headache and pain · 2023Article
- Depression and anxiety in women with idiopathic intracranial hypertension compared to migraine: A matched controlled cohort study.Headache · 2023Article
- Understanding the link between obesity and headache- with focus on migraine and idiopathic intracranial hypertension.The journal of headache and pain · 2021Review
- Development and Validation of Quality of Life in Idiopathic Intracranial Hypertension (QOLIH) questionnaire.Frontiers in neurologyArticle
- Article
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIdiopathic intracranial hypertension (IIH) is characterized by increased intracranial pressure without evidence of a tumor or any other underlying cause. Headache and visual disturbances are frequent complaints of IIH patients, but little is known about other symptoms. In this study, we evaluated the patients' perspective on the burden of IIH.
methodsFor this cross-sectional study, we developed an online survey for patients with IIH containing standardized evaluations of headache (HIT-6), sleep (PROMIS Sleep Disturbance Scale) and depression (MDI) in relation to BMI, lumbar puncture opening pressure (LP OP) and treatment.
resultsBetween December 2019 and February 2020, 306 patients completed the survey. 285 (93 %) were female, mean age was 36.6 years (± 10.8), mean BMI 34.2 (± 7.3) and mean LP OP at diagnosis was 37.8 cmH
conclusionsIn addition to headaches and visual disturbances, sleep disturbances and depression are frequent symptoms in IIH and contribute to the patients' burden. Structured questionnaires can help to identify IIH patients' needs and can lead to personalized and better treatment.
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