Evidence map›Paper›PMID 34238038›Full record

ArticleAutism : the international journal of research and practice2022

Adding the missing voice: How self-report of autistic youth self-report on an executive functioning rating scale compares to parent report and that of youth with attention deficit hyperactivity disorder or neurotypical development.

Lauren Kenworthy, Alyssa Verbalis, Julia Bascom, Sharon daVanport, John F Strang, Cara Pugliese, Andrew Freeman, Charlotte Jeppsen, Anna C Armour, Geneva Jost and 2 more

Open access · greenAbstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.

  1. Pooled it
  2. Executive function challenges persist into young adulthood and predict mental health outcomes in autism.Journal of child psychology and psychiatry, and allied disciplines · 2026
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  12. Associations Between Executive Functioning, Behavioral Functioning, and Adaptive Functioning Difficulties in Wiedemann-Steiner Syndrome.Archives of clinical neuropsychology : the official journal of the National Academy of Neuropsychologists · 2024
    Article
  13. Social motivation by self- and caregiver-report: Reporter concordance and social correlates among autistic and neurotypical youth.Autism research : official journal of the International Society for Autism Research · 2024
    Article
  14. Article
  15. Frontiers in psychology · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 4 institutions in 1 country.

Lauren KenworthyChildren's National, USA.ORCID 0000-0001-5887-8463
Alyssa VerbalisChildren's National, USA.
Julia BascomAutistic Self Advocacy Network, USA.
Sharon daVanportAutistic Women & Nonbinary Network, USA.
John F StrangChildren's National, USA.
Cara PuglieseChildren's National, USA.
Andrew FreemanUniversity of Nevada, Las Vegas, USA.
Charlotte JeppsenChildren's National, USA.
Anna C ArmourChildren's National, USA.
Geneva JostChildren's National, USA.
Kristina HardyChildren's National, USA.
Gregory L WallaceThe George Washington University, USA.
Children's National · USAutistic Women & Nonbinary Network · USGeorge Washington University · USUniversity of Nevada, Las Vegas · US

Funding

Multimodal Developmental Neurogenetics of Females with ASDR01MH100028 · NIMH · YALE UNIVERSITY · PI Allison Elizabeth Jack, LAUREN KENWORTHY · 2012 to 2026
$37.8M
Research_ProjectU54HD090257 · NICHD · CHILDREN'S RESEARCH INSTITUTE · PI GUAY-WOODFORD, LISA MARIE · 2016 to 2020
$5.9M
Characterization of executive function dimensions across pediatric psychiatric disordersR01MH110512 · NIMH · GEORGETOWN UNIVERSITY · PI KENWORTHY, LAUREN, VAIDYA, CHANDAN J · 2016 to 2021
$2.2M
Behavioral and Neural Outcomes of a New Executive Function Treatment for Transition-Age Youth with ASDK23MH110612 · NIMH · CHILDREN'S RESEARCH INSTITUTE · PI PUGLIESE, CARA · 2016 to 2019
$616k
NICHD NIH HHS U54 HD090257NIMH NIH HHS K23 MH110612NIMH NIH HHS R01 MH100028NIMH NIH HHS R01 MH110512
6 · The paper itself

Abstract

lay abstractExecutive functions are often impaired in autistic people and relate to important outcomes such as mental health, success in school and work, and quality of life. Evaluating executive functions helps autistic people, clinicians, and families identify targets for external supports and skill building. Youth self-report of executive function has not been studied, yet we know that self-report from autistic youth is key to understanding other cognitive/behavioral phenomena in autism such as anxiety, obsessions/compulsions, sensory sensitivities, and repetitive behaviors. We investigated self- and parent-report of executive function problems in 197 autistic youth without intellectual disability (ages 11-18 years), including the magnitude and profiles of executive function problems autistic youth report across subdomains of executive function. We compared autistic self-report with that of 114 youth with attention deficit hyperactivity disorder without intellectual disability and 197 neurotypical youth. We found that autistic youth report significant executive function problems compared to neurotypical youth and a distinctive profile of challenges in comparison to attention deficit hyperactivity disorder youth. Parents and their autistic children diverged regarding the magnitude of the youth's executive function difficulties, but both identify inflexibility as the most impaired executive function subdomain. Autistic youth and their parents were somewhat more concordant in their report of executive function problems than youth with attention deficit hyperactivity disorder and their parents, but only showed moderate concordance at best. These findings elevate the importance of asking autistic youth directly about their executive functioning when engaging them in assessment and intervention, or researching executive functions in autism.

Indexed as

Attention Deficit Disorder with HyperactivityAutism Spectrum DisorderAutistic DisorderAdolescentChildExecutive FunctionHumansQuality of LifeSelf Reportattention deficit hyperactivity disorderautismexecutive functionparent reportpsychometricsself-reportyouth

Identifiers

PMID34238038
PMCPMC8742839
OpenAlexW3177587315

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.