ArticleJournal of geriatric psychiatry and neurology2022
A Survey of People With Parkinson's and Their Carers: The Management of Pain in Parkinson's.
Article in Journal of geriatric psychiatry and neurology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Perceptions of the Provision of Pain Care Services from the Perspective of People with Parkinson's Disease: A Qualitative Descriptive Study.Journal of multidisciplinary healthcare · 2025Article
- Factors Influencing Pain Management Practices in People With Parkinson's Disease: A Qualitative Descriptive Study.Parkinson's disease · 2025Article
- Observational
- Article
- Understanding what aspects of Parkinson's disease matter most to patients and families.Scientific reports · 2024Article
- Pain and the Non-Pharmacological Management of Pain in People with Parkinson's Disease.Journal of Parkinson's disease · 2024Review
- A Mixed Methods Approach to Explore the Experience of Pain and Its Management in People with Parkinson's Disease.Parkinson's disease · 2024Article
- What is available to support pain management in Parkinson's: a scoping review protocol.International journal for equity in health · 2023Article
- Device-Aided Therapies in Parkinson's Disease-Results from the German Care4PD Study.Brain sciences · 2023Article
- Impact of COVID-19 Pandemic on (Health) Care Situation of People with Parkinson's Disease in Germany (Care4PD).Brain sciences · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPain in Parkinson's is problematic but under treated in clinical practice. Healthcare professionals must understand the impact of pain in Parkinson's and patient preferences for management.
objectiveTo understand the impact of pain in Parkinson's and to understand current management and preferences for pain management.
methodsWe conducted a national survey with 115 people with Parkinson's (PwP) and 10 carers. Both closed and open questions were used. The questions focused on how pain affected the individual, healthcare professional involvement in supporting pain management, current pain management strategies and views on future pain management interventions. We used descriptive statistics to summarize closed responses and thematic analysis to summarize open question responses.
results70% of participants reported pain impacted their daily life. Pain had a multifactorial impact on participants, affecting movement, mood and quality of life. Improved pain management was viewed to have the potential to address each of these challenges. Pain affected a number of different sites, with low back pain and multiple sites being most frequently reported. Exercise was the most frequently noted strategy (38%) recommended by healthcare professionals for pain management. PwP would value involvement from healthcare professionals for future pain management, but also would like to self-manage the condition. Medication was not suggested as a first line strategy.
conclusionsDespite reporting engagement in some strategies to manage pain, pain still has a wide-ranging impact on the daily life of PwP. Results from this survey highlight the need to better support PwP to manage the impact of pain.
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